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← Return to Epilepsy or PNES seizures
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Epilepsy & Seizures | Last Active: 3 days ago | Replies (9)
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Hi, @meagan. Welcome to Mayo Clinic Connect. That's quite a bit of back and forth with taking or not taking the levetiracetam (Keppra) and trying to decipher if you have epilepsy or psychogenic nonepileptic seizures (PNES).
I applaud your continuing to seek answers.
I'm tagging a few members who have mentioned PNES and may have some insight for you as you try to determine if you have epilepsy or PNES @drivenbyme @hosey70 @jcnel @lindaibm @tonyde @stuckonu. I'd also like for you to meet @jakedduck1, who may have some thoughts for you.
If I understand properly, you feel the medication is helping with your seizures, but your neurologist wants you to taper off at this time?
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Hi Lisa, I hope it’s ok to jump in this thread. By husband has been having seizures for over 1 year now. They started more violently with flailing limbs but it’s just his hands and feet that uncontrollably move be on weird unnatural moves vents causing severe pain.
One example is one of his arms will want to go behind the back and it’s with all of his might and with the legs it’s more of a pretzel, but still just so tight and tense nothing can break it until the body releases it
We just need help please. We’ve going to the neurologist here that put us in the hospital for a few days for the EEG and after said there was no signs of epileptic seizures so must be PNES and that is where we are now we do not have a care team we don’t know where to go from here. This is continuing to affect our lifestyle and a major way it happens frequently and I don’t feel it’s ever been either diagnosed correctly or if they are just giving him medicine to try things out this cannot continue and I’m in desperate need of getting my husband back to himself please