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What is the prognosis for mac and bronchiectasis?
MAC & Bronchiectasis | Last Active: 2 days ago | Replies (25)Comment receiving replies
Just a note to say life is always a little different for those of us with bronchiectasis, but I was diagnosed in 2014 at Mayo's in Rochester but had truly suffered for more than 10 years prior to that with all specialists in my Oklahoma area. It never was diagnosed by any locals but my coughing and phlegm production was tremendous. And, finally as a last result I went to Rochester. I just had my 84th birthday and while I've never been cured (and I was told that upfront), there are good times and then some not so good but right now I'm doing very well. The first doctor I had at Mayo's smiled when I asked if I would die from this and he said "you will die with it but hopefully not from it". I'm thankful for all the help I have received. Jan
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Jan- I was fortunate in that it took me about 3 years vs your 10 years in Oklahoma to find out I had Bronchiectasis. After my seeing my PCP frequently to say "something is wrong" and carrying a "spit up" with me into the doctors office(s) my PCP finally said, "we need to do a C Scan" due to my having lost 30+ pounds. With the results in he called me into the office, sat down with me, held my hand and said "you have Bronchiectasis". With my making an appointment with a local OKC pulmonologist after the news, it didn't get me the help I should have expected therefore I headed up to NJH in Oct. 2023.
As of this date I have not started the antibiotics, my choice. That may change soon to see if it will help stop the constant need to clear my throat of the sputum/mucus. I have MAI.
I turned 82 this past October. Are you in the OKC area?
Barbara