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Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Hi, my name is Denise and my 31 year old son was diagnosed as having epilepsy after having 2 seizures within a few months of each other. the VA doctor actually said "if you have 2 or more seizures you have epilepsy". That was over a year ago and he continues to have seizures. They gave him Keppra and sent him on his way. Nothing more. I am looking for a plan of attack for these seizures. What do we do next. He is not satisfied to just take Keppra.
he has both private insurance through his job and the VA. What is his next step? I found him a Neurologist and will see him in a week. The Keppra does not work very well and he is afraid he will not be able to drive,hence not work,hence no private insurance. All this anxiety is not good for his condition and the Keppra doesnt help his anxiety at all. We need a plan what do we do Now? where do we go for REAL answers?
Any ideas would be appreciated. Thank You!
Replies to "Hi, my name is Denise and my 31 year old son was diagnosed as having epilepsy..."
They started me on Keppra, and I made it 58 days without another seizure.. then I had a seizure 2 days in a row, so my neurologist added Vimpat and now I”m 75 days seizure free.
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At which medical center did your son receive his diagnosis? I would like to suggest visiting the Mayo. If the Keppra isn’t working for him, they will keep working to find something that works. They will also look at other things, like the anxiety, that might be contributing factors and not just the epilepsy. They can also do gene testing to find which medication works best for him. I don’t know if this is a possibility for you or not, but with three Mayo Clinics now I strongly believe this is the best option. Sending best wishes to you as you move forward.