Connect
← Return to Living with epilepsy - Introduce yourself & meet others
Discussion
Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Hello I have a 5yr old she is having several seizures a day have had an egg done and doc says she is trying to prevent her from having grandma seizures and she is very tired alot my question is how long should I let her sleep in the day for nap. We are waiting to go for mri to rule out tumor but med is not helping as she seems to be having more staring spells a day and do I home school her as she is so tired and couldn't handle an 8hr day with out a nap I hope someone can give me some advice as thank you and God bless
Replies to "Hello I have a 5yr old she is having several seizures a day have had an..."
They last for 12seconds and up her eyes go up and her head goes up and I have taken things from her hand while having one and she doesn't recall it happing she has nor memory of what is going on while she has them they do have her on med but it is not working and they are wanting to do a 48 hrs eeg end of August and a mri this week do I home school her because she is tired and I don't think she can handle a 8hr day and she takes a 2hr to 3 hr naps and goes to bed of. Ti.e
Let your daughter take a nap as long as she needs. Fatigue can be a trigger of a seizure as well. By having several seizures daily she's exhausted
Hi sweetpea81212, They sound like typical absences to me but they also sound like they have some Atypical characteristics which only a doctor can decipher. The hours of sleeping confuses me. Are you sure she isn’t having another type of seizure, perhaps. In typical absences removing something without notice makes since without remembering. Does she ever jerk, arms legs head?? Although It doesn’t sound like Myoclonic jerks, has the doctor ever mentioned that? The EEG will show a slow wave pattern if Absences are present. Most MRI’s in Epilepsy patients when looking for causation turn out to be negative.
One important thing you need to know is studies have been done showing how important it is to not switch drugs from Brand to Generic and vs versa and ALWAYS use the same manufacturer too. What drug/drugs is your daughter taking. Phenobarbital has been in use for over 100 years. It is the number one used seizure medication in the world Wishing your daughter the best and your
family too.
Connect
Do you know if she is having typical Absences or Atypical Absences? Typicals rarely if ever cause tiredness. If Atypical it’s common to be tired and need to rest or sleep especially if they have more than one or a group of them. Atypical Absences also last longer, usually 10-30 seconds. Does she just stare for a very short time maybe 3 seconds or so or is there some type of movement like lip smacking, rubbing fingers together, eye movements blinking. Can you arouse her at all. If having a typical Absence the person can’t be aroused. These seizures usually begin prior to age 6. They very often stop by age 18. Has she ever had a Grand Mal Seizure? Now known as Tonic Clonic. If so has the doctor ever mentioned Lennox Gastaut syndrome (LGS) With most people with Epilepsy an EEG and MRI are usually normal.