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@jakedduck1

Hi Robert,
E for 59 years, long time huh. I’m 65 and had E for 51 yrs and have had some of the same problems so I can relate to how you feel. I sometimes feel like you about the childhood memories. However when looking through our old pictures I really miss the memories that go with them, especially those of my parents. I didn’t even know my parents when they picked me up to take me home from the hospital after being in an induced coma for a month. It was so frightening to go with basically strangers to who knew where. But it all turned out well. My parents sat with me one on each side with pictures and explaining where, when and all the details. We sat for hours they answered all my questions. The nurse had called my parents and told them how scared I was to see them. When they did the Mental Status Test I was Oriented X1 which means you only know who you are. I’m not sure I knew that much.
I was recently thinking about the prom too. No girlfriend here either. It’s painful to know all the things we missed during our younger years (assuming you missed the same things too.) I do wish I remembered something about my best friend though. I see him occasionally and it’s somewhat awkward. Even now I don’t remember trips. I went to Yosemite with a couple friends and don’t remember the trip at all. Don’t remember anything about the Worlds Fair in New Orleans except the horrible humidity. It’s like that about everything I do. To this day my brother can name virtually every city we went through and what the wether was like in those cities. My brother when talking about our childhood with my mom he always says “Do you remember, no you don’t” and I don’t. It doesn’t bother me at all. I also had very few friends even now I have only about 3 friends (true friends.) Having seizures in front of people never bothered me since I was usually having one. I was asked to leave school in the 10th grade since the floor was my desk most of the time. If I wasn’t seizing I was post Ictal. I’ve had seizures everywhere, roof, tree, on bike, driving, stairs, middle of the street, swimming pool, space mountain at Disneyland you name it. I laid on the floor a lot while watching TV since I’d be there soon anyway. Are you still having any seizures Robert?

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Replies to "Hi Robert, E for 59 years, long time huh. I’m 65 and had E for 51..."

had a few in october, nov, dec,now on vimpat and keppra.dont drive,only go in water if theres people around,havehad to avoid a lot of things.lived most of life near the ocean,never swan in ocean,been up to my knees thats it,sex ok for me just had a late start,lol.