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@jakedduck1

I have had Epilepsy for 51 years. I’ve mainly suffered Tonic Clonic and Convulsive Status Epilepticus which ended me up in the hospital in induced coma’s for various periods of time and more often than I care to remember, even if I could. My first episode cost me all my memory from age 15 back. None has ever returned. I also had focal and absence seizures but not as many. I’ve had over 13,000 seizures in 46 years. I was a frequent user on various Epilepsy forum sites. I also raised money for Epilepsy research. I have ended up falling down staircases, falling off my bicycle between parked cars, in the gutter on peoples lawns and almost anywhere else one can imagine.
I really enjoy trying to help others new to this most distressing condition and the stigma that goes along with it.

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Replies to "I have had Epilepsy for 51 years. I’ve mainly suffered Tonic Clonic and Convulsive Status Epilepticus..."

hi jakedduck1,ive had grand mals since i was 5 ,now 64,losta lot of memory through the years,most of my schoolyears forgtten.might be for the best,didnt really have much enoyment as a kid,always worried about aseizure in front of everyone.Never kept track ofseizuresdidnt want too.memory of seizures seemto fade away..To me im 64 and still around,alot bad situations but still in one piece.Just wish i hadnt let my problem kept me in the background during my school years,few friends,no sports,nogirl friends,no prom.kindabothers me now