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Advice on PSAM-PET/MR 3+4=7

Prostate Cancer | Last Active: 4 hours ago | Replies (29)

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@surftohealth88

"Anyone know how the urology staff is at UCSF?"

UCSF - so far SLOW, unresponsive and ambiguous. Had to call about 20 times and still no "second opinion" on pathology or PSMA !!! It has been about 5 weeks since we sent slides for second opinion *eye roll
We called Stanford yesterday just to "ask" about TULSA (probably we are not good candidates but just had enough of being sitting duck ), lady that answered immediately accessed all results and told us that she will present those to comity of 4 or 5 doctors ( I forgot number) and that they will do evaluation and CALL US !?! I was floored ! Like day and night .
Anyhow, maybe you will have more luck. If we were not soooo focused on RP and success rate there for that procedure , we would probably pick up and fold out tent long time ago.

I am especially upset since our slides are now "stuck there" and we wanted to hear third opinion - but we have consultations soon so we will endure *sigh They promised to "digitalize them" and nothing happened in that regard either.

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Replies to ""Anyone know how the urology staff is at UCSF?" UCSF - so far SLOW, unresponsive and..."

Sorry to hear that, so far I have not had any issues! But I do have a couple of questions, how do find out who is a good surgeon and 2nd how do you get a second opinion from him?

If you want a third opinion, you should do it with Dr. Epstein in New York. He really is considered the best of breed when it comes to analyzing prostate cancer.

Dr. Jonathan Epstein pathologist for biopsy review
https://advanceduropathology.com/consultation/

Go elsewhere. My UC experience was at a sister medical center, UC Sacramento. I thought that the best care would be with a university medical center. I was wrong. 8 months following initial presentation without a diagnosis and not having once seen a urologist. “He is pretty booked up”. Seen by a NP of questionable competency. Went elsewhere, diagnosed within a week with 4+5 and initiated chemo the following week. My read is that the California medical centers are overloaded and understaffed.