← Return to Recurrence after Whipple, Folfirinox and radiation (SBRT)

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@carrie40

Thank you for remembering...after the radiation I had stents on the ureter which was blocked--all was well until the CA 19 antigen went up, with no evidence of cancer on a CT and PET. So now I am diagnosed with peritoneal carcinomatosis with no positive recommended treatment other than hospice. Wow. But I have been referred to Sarah Cannon for a potential clinical study; I'm waiting now after my first visit which was encouraging. Keeping my fingers crossed and my hopes up, not just for a cure but for a longer life expectancy. Meanwhile, with a bit more discomfort in the abdomen, I'm still enjoying life and it's still pretty normal. Hugs, Carrie

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Replies to "Thank you for remembering...after the radiation I had stents on the ureter which was blocked--all was..."

@carrie40 Did the mets ever show up on a PET or CT?

I don’t make ca19-9.

Hoping for clinical trial for you.

Best,
Lynne’