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Let’s have a chat about what if anything works to improve your life wi
Neuropathy | Last Active: May 11 7:21pm | Replies (77)Comment receiving replies
I was diagnosed with this damn condition in my feet about 2 years ago. The problem is, it took 3 neurologists, and 2 neurosurgeons almost a decade before someone would tell me what I already knew, there wasn't anything they could do about it. There's no cure, or real treatment, all you can do is try to treat the pain that's never going to go away. We're stuck with this until the day we die.
The worst part, none of these "specialists" offered any words of encouragement, or sympathy, or even any medications that might help. Basically I was told to just deal with it. My GP gave me my prescription for gabapentin, none of those "special" doctors.
Currently I'm taking 3600mg of gabapentin a day, 4/300mg capsules 3 times a day, and 1200mg of alpha lipoic acid, 1/600mg capsule twice a day to dull the pain in my feet. Most days it's not to bad, some days are worse than others, depending on how much time I spend with my feet elevated in my chair.
I've tried nerve blockers and CBD products with zero results. I won't waste our money on anything sold on-line or on TV, it's all a scam. Once a nerve has been damaged or died that's it, game over.
Replies to "I was diagnosed with this damn condition in my feet about 2 years ago. The problem..."
It's great that you are a realist and I agree with everything that you said. My only question is whether you might want to look into taking pregabalin (brand name Lyrica) that I take twice a day. I know that most PN people have different symptoms, different levels of pain, etc. but I don't experience pain. I was officially diagnosed by the neurologist that I waited 6 months to see. In that interim, I did a lot of google searches and found this site that I do find to be helpful especially in what works, and what not to spend your time and money on.
Just thought I would mention as different neurologists prescribe different rx's for their patients. I was prescribed the Lyrica by the Pain Management doctor at the hospital that I go to when necessary. Thanks again, for your honesty! - Susan
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That sucks! I hear you @mrmacabre. Frustrating to say the least. Docs with no empathy for their patients should find another profession. I do believe that there are those out there that truly care about their patients. The key is to find them! I have prostate cancer and I fired my first urologist because he used me like a guinea pig! I did my research and now have a wonderful urologist who works hand in hand with me! My other specialists are similar or I wouldn't let them touch me! My neurologist who diagnosed me with IPN I fired because he offered nothing! I live in a major city/state that is known for excellent health care. Unfortunately, not everyone has that same advantage. We care. I care. Take care....