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Progressive Polyneuropathy

Neuropathy | Last Active: 2 hours ago | Replies (27)

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@ray666

Good morning, elained (@elained)

In the summer of 2022, I was diagnosed by EMG with idiopathic polyneuropathy. Although my doctor didn't go into it at the time, I was quick to learn that most if not all neuropathies are progressive. What would remain unknown was the speed and severity of the progression. That was up to an individual's PN. I've since refined my PN to idiopathic large-fiber (no pain, but lots of balance issues) PN. I've watched my balance carelly, alert to signs of progression. To date, I've not noticed a great deal of progresson: little to none. Last year, I had a second EMG that confirmed my layman's assessment: little to no progression. If I were to be honest, I'd say that I have experienced some progression, but it certainly hasn't been dramatic. I have to be careful around the house, doing a fair amount of wall-walking. Outdoors and in all unfamiliar environments, I tote a cane. But, after going on three years of living with PN, I'm still getting around, not the person I once was, but still in good spirits despite my PN and despite whatever progression has occurred.

I wish you well!
Ray (@ray666)

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Replies to "Good morning, elained (@elained) In the summer of 2022, I was diagnosed by EMG with idiopathic..."

Thank you Ray. I too have a similar diagnosis of large fiber poly neuropathy. Ive noted some disturbing balance issues lately. But I’m continuing to push forward. Now that I recognize this issue I’m more alert to my surroundings. Not going to let it interrupt my daily activities though. Good luck.