← Return to Living with epilepsy - Introduce yourself & meet others

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@tracy612

Greetings, my name is tracy612. I have had siezures for about 4yrs now. They started on the operating table during my 3rd neck surgery. The first yr was horrible, with all the seizures and tests, and accsidents that went along with the seizures. That first yr was so active, that I ended up with slight brain damage in my frontal lobes. Nothing has been the same sence then. I have Chronic fatigue syndrum, a skin condition, called Sneddens Wilkenson, and my balanne is poor. I went from being a nurse for 25yrs and an EMT to not being able to leave my home. I recently had 7 seizures in 1 afternoon, and I lost 4 days from them...Before that day, I was only having 1to 2 a month. Although I did recieve some blessings from the seizures, like colors are so vivid, ive taken up painting rocks, and i now am involved in all types of crafts,(your trash is my craft)..I still dont understand my diseace very well, and im scared I might get early onset Altimers or/dementia. I just want to talk with others so Im not feeling so alone...I have unconscience onset gand maul seizures, im on 2000mgs of Keppra,..and everytime i have a seizure I cant remeber things. Sometimes I cant understand what folks are saying to me, and sometimes, I will say a complete paragraph, and its off topic and makes no sence to the people around me..I smell dark dirt right before a seizure and I loose my taste buds for days after..Thanks for listening,..im glad i found this group...Blessings Tracy612

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Replies to "Greetings, my name is tracy612. I have had siezures for about 4yrs now. They started on..."

Hi Tracy... I’m new on here. My seizures sound very similar. I do not have Epilepsy. I’m on Keppra as well. I will go for a week with no seizures to 6-12 in a week. I have 8 concussions and my life went from being very active to unemployed and loosing many days of confusion and saying things that don’t make any sense. I have applied for disability because I have no income. These started from a fall in 2016 and have continued. I was in Mary Freebed a rehabilitation center in MI for 3 months. I’m home bound and so sad about my life changes.

Hi Janna,..doesnt it suck!! I was always so active, and now, just like you brain damage. I would love to talk with you, you sound alot like me, lonly,..Plz let me know if you are interested in getting to know each other, I am,..Tracy

Hi Tracy! It more than sucks! I can’t even ever remember feeling so scared of what life will be like and if it will ever be normal! Thank you for reaching out to me!