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Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Hi. I’m Irene from Az. Retired and enjoying.
I have photosensitive epilepsy. Strobe lights or certain pattern will trigger a seizure. I haven’t read much with others dealing with this type. I am not on any meds. Trying to use avoiding triggers. 8 years ago I tried meds and there were too many side effects.
I am glad to find this site.
Blessings
Irene
Replies to "Hi. I’m Irene from Az. Retired and enjoying. I have photosensitive epilepsy. Strobe lights or certain..."
Two things that help are put on sunglasses or cover one eye. Small led lights moving quickly and the stupid lights on the children' shoes especially when there running can give me a horrible migraine on the left side of the brain where the left temporal lobe is located
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Irene,
I too have the same issue with strobe lights and really most flickering lights....sunshine flickering through the trees while riding down the road is a HUGE problem. Until recently, I had not read of many cases like this. However, I did join an Epilepsy group on Facebook and it seems to not be all that uncommon. I hope you find much validation and some answers here.
Kindest Regards,
Kristin