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Gastrinomas and Whipple procedure
Neuroendocrine Tumors (NETs) | Last Active: May 2 9:32pm | Replies (11)Comment receiving replies
Oh yes head had explosive diarrhea for almost a year now. Been to
gastrointestinal specialist and er visits for dehydration. February had
another bout and CT. Scan revealed a mass. Send us to bigger hospital for
biopsy. On the way there had an upper GI bleed. Stomach filled with blood
and push acids into esophagus which damaged it. Unable to do the biopsy.
Less than 2 weeks later helicopter ride back to the cities with a double
pulmonary embolism. Had to have thrombolectomy. After that they were able
to do the biopsy. Had appt. With the surgeon, who talked about a whipple
procedure as the tumor is at the head of the pancreas. Dot. Scan revealed
metastases. Referred us to Mayo. He has been omeprazole twice a day,
sulcrafate for the throat damage. Has hard time swallowing and now is
having hand tremors and is unsteady on his feet. Mayo appt. May 5th.
Replies to "Oh yes head had explosive diarrhea for almost a year now. Been to gastrointestinal specialist and..."
@jonswife, I wanted to check in. I see that your appointment at Mayo Clinic is coming up soon. Will you be heading there this weekend? Which location are you going to?
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I had explosive diarrhea also not a fun thing to deal with! I get the lanreotide injections every 28 days which controls that. I take esomeprazole 3 x daily and Pepcid 1x and sulcrate 3 x . I read where they don’t usually do a whipple if it is in the liver. Not sure that is true we are all so different. My first treatment was lanreotide then 7 months of chemo these did not control tumors in the liver I had about 30 they were causing most of the excess Gastrin I then had high dose radiation on my liver that finally shrunk the tumors. No treatment on pancreas even though that is the primary location of my disease tumors in the pancreas grow much slower than the liver because tumors need blood supply. I am not sure of the future of the pancreas. It does t sound like you have any answers yet that is very difficult to deal with. May 5 can’t get here fast enough I believe the PeT scan with show them a lot! He will more than likely start with 28 day injection while they develop a treatment plan.