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@cordelia73

Thanks for your answer. That's exactly what Im afraid of, this being a death sentence. Did you tumors shrink or go to "sleep"? My husband is positive and eager to start, Im the one that has been having trouble dealing with everything and wanting to know life expectancy with this type of cancer, Ive never heard of it before. I hope you are fine and getting better every day. Thanks for answering.

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Replies to "Thanks for your answer. That's exactly what Im afraid of, this being a death sentence. Did..."

@cordelia73 - my tumors have been stable, no new growth for the last 2 yrs. There are other " tools" if that happens- chemotherapy or PRRT / Lutathera for receptor responsive NETs. People live upward of 10 yrs with this disease. It is considered now more like a chronic disease. Please, please be positive! There will be bad days, but there are good days as well! Keep the faith!