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DiscussionAny one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: 2 hours ago | Replies (73)Comment receiving replies
Replies to "Thanks for your answer. That's exactly what Im afraid of, this being a death sentence. Did..."
@cordelia73 - my tumors have been stable, no new growth for the last 2 yrs. There are other " tools" if that happens- chemotherapy or PRRT / Lutathera for receptor responsive NETs. People live upward of 10 yrs with this disease. It is considered now more like a chronic disease. Please, please be positive! There will be bad days, but there are good days as well! Keep the faith!