I have pelvic dyssenergia. Does anyone else have that?

Posted by ltarashuk @ltarashuk, Apr 15 10:11am

Hi,
I have CIC but also have pelvic dyssenergia. Does anyone else have that? I have been to pelvic floor PT but still can’t evacuate completely. Wonder if anyone has any suggestions. Thank you

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@jlstjohn

I do not know how it works at Mayo as far as seeing PT, I actually do the majority of my health care elsewhere.

The wand has 2 ends, one for vaginal insertion and one for rectal, so it can be used for either. The company I bought mine from (Intkmate Rose) has great tutorial videos on YouTube. I have only used the rectal route. I will also feel that things need to come out but will not, but after I use the wand (sometimes for a very short time, even as short as a minute) I will have a movement.

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I can relate. I already have something similar, but will order a new one. Thanks!

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@jlstjohn

I actually have somewhat of a predictable pattern with my bowel movements, where I get into trouble is in the afternoon and know it is best if I can be home then. I know, I wish the doctors would further explain how someone who has primarily diarrhea can have a moderate to large stool burden. They usually just tell me to do a home Miralax clean out. Oh, by the way, I take my Miralax dose all at once in the morning, I am currently on 4 capful daily. I tolerate it fine taking it all at once, but I know everyone is different.

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Thank you very much. I like the idea of doing it all at once.. I wish there was a way to not have to live with diarrhea daily.

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