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DiscussionAdjusting to life with temporal arteritis
Polymyalgia Rheumatica (PMR) | Last Active: Jul 22 6:55pm | Replies (263)Comment receiving replies
Replies to "About a year and a half behind you, so you are a pioneer for me! Hope..."
I hear that a fair number of GCA patients were previously in excellent
health as you were and I was, so the diagnosis is a shock and takes some
adjustments. I hope all goes well with you. It has helped me so much to
read about other people’s experiences and coping mechanisms.
I too admire Linus Pauling’s vitamin C work. I’m going now more to food
with vitamin C to get the co-factors.
I was diagnosed with GCA and PMR 10 months ago. I started with 60 mg prednisone a day for 6 weeks, and I started taking weekly Actemra injections a month after being diagnosed. I didn't notice anything from the Actemra, other than occasionally being a little tired the day after the injections. I'm currently at 5 mg a day of prednisone and still taking the weekly Actemra injections. I haven't had any issues since starting treatment.
I've read that it can take anywhere from a couple of weeks to several months for the Actemra to take full effect.
Good luck with your treatment!