I write this blog following my recent experience of aquablation surgery 25 days ago.
I welcome advice from anyone with similar experience I outline at the end of this report but will give my background first.
I was diagnosed with prostate cancer 8 years ago with a low gleason score and have been on the ‘watch and wait’ programme with PSA blood tests being monitored every 3 months. They have ranged from 7 to 11 over this period and my consultant remains unconcerned at this stage.
I am 66 years of age ‘fit’ and healthy at 6ft 2 inches and 12 stone 12 lbs (81kg). I’ve never smoked and rarely drink any alcohol.
4 years ago I went into ER for acute urinary retention and then 3 months ago acute urinary retention in ER again resulting ing a catheter for the past 3 months. MRI showed my prostate had double ti 2 years to 137 cc. I had been taking Tamsulosin for 8 years and for 4 month Finasteride.
On 29 March 2025 I had my aquablation op and was told all went well considering the size of the prostate !
I stayed 2 nights in hosp not the one suggested and was released with a catheter returning to hosp on day 4 for its removal and several flow tests. Euphoria kicked in as pee’d like the proverbial horse. I went home catheter free to my new life… it lasted 24 hours. Then the nightmare began. I was admitted to ER with blood clots and acute urinary retention again admitted back onto the hospital ward and was told this is normal … so normal I was released the following day. Only for the same to happen again 24 hrs later and a re admission onto hospital ward with re cathetirisation and morphine. I was released again on for 48 hours later for the same clotting to happen again with urinary retention. SO my assumption is ‘size does matter’ as my prostate being twice the normal enlarged prostate was going to have double the ‘damage’ inflicted.
I was released again for 10 days and went back to hosp to have catheter removed. Undertook 3 flow tests and was delighted with the result only the nurses weren’t .I was leaving over 150 ml after voiding. I was sent home with a re admission to hosp the next day where my flow tests improved , slightly. I was sent home with self catheterisation material which I haven't used. I’ve had 5 days at home and have been ok. Although I’m up every 2 hours between 11pm and 7am peeing and checking for clots. Ive now developed my first UTInfection and am on antibiotics. Things seemed to be getting better although I have a lot of perineal pain when peeing. I believe this is normal. However tonight at 9pm after a good flow rate all day I go to bathroom and pee over 100ml of blood. After several hundred mls of water later I’m still bleeding and have passed a small clot my question is. Is this normal as being intermittent and now a sudden change 25 days after surgery. I will keep you posted on positive progress but the smiley brochures and You Tube re assurances and testimonies of ‘ road to recovery stories after a week or so have not been my experience at all.
Sorry you've had such a bad experience. I'm a 75 year old in pretty fair physical condition and good weight. I started having urinary problems about 15 years ago, and was put on tamsulosin, then alfuzosin and low-dose tadalafil. Over the years my symptoms worsened, but PSA was never over 5.5. Finally I opted for aquablation for a surgical solution. An MRI showed my prostate was 184 cc. After surgery I was sent home with a catheter for 2 days. When it was removed, I was able to void sufficiently (retaining less that 50 cc) and had a strong stream. All was fine for about 10 days until my urinary stream because very thin. I had developed a stricture, which apparently is not that uncommon. I went through two urethral dilations to improve the diameter of my stream. I was advised to self-catheterize daily to keep the stricture from recurring, or consider some form of urethroplasty to permanently fix the problem. No way! I've had enough surgery. So I began self-catheterizization on a regular schedule, decreasing the frequency. Now, after a few months I do it about every 5-7 days, with the hope of decreasing the frequency even more. It's been a tough road, but still glad I did it. Other than the stricture, I did develop some ejaculatory dysfunction which isn't that important to me at my age.
I hope your condition improves @bryn1203