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Optic nerve sheath meningioma, worried about results 3 month checkup

Brain Tumor | Last Active: May 3 11:31am | Replies (12)
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@santaflavia

Hello Colleen, I just joined today after finding this with an online search. I have seen a radiation oncologist at Mayo via video visit and I will be seeing a local radiation oncologist
here in Milwaukee later this week. I am extremely anxious trying to make a decision whether or not to have radiation at Mayo for an Optic Nerve Sheath Meningioma or locally. I would appreciate any advice from others who have had the radiation at Mayo Rochester. Thank you. Today is April 21, 2024.

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Replies to "Hello Colleen, I just joined today after finding this with an online search. I have seen..."
mkoch | @mkoch | Apr 22 7:24pm

Do you live in Milwaukee? Is that the reason to have the radiation done there instead of the Mayo clinic in Rochester, which is 4 hours away? When I was advised to have radiation for my a meningioma 1/16th of an inch from my optic nerve I was told the radiation schedule would be 5 days in a row, and then I would be done. That would be worth it to me to rent a hotel in Rochester for a week and know I am having the radiation done at a world renown medical institution. (As an aside, I chose to have a craniotomy to remove the meningioma instead.)

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