Hans... this is the most succinct, on-point, insightful piece I have read on the subject. Not just prostate cancer, but cancer in general. I have always been on top of my health. Pretty good diet, no bad habits (social drinker I guess is one), exercise vigoruously and intensively my entire life, get checked regularly (every 6 months lab tests - including PSA). But I get diagnosed at 63 in July 2023. Stuff stuck into every hole in my body. Scanned in multiple machines. "Caught it in time" - "all I needed" was a radical prostatectomy. No "apparent" spread. Incontinence, ED, stomach pain, perineum pain followed - a measure of all still exists 18 months later - all activities in my life have changed. I go every 3 months for bloodwork to see if I'm still "good". No, there is nothing "good" about cancer. And I did completely feel inserted into a "system" with a template - a protocol. No nuance. No time to ruminate on alternative therapies. Heaven forfend I be a "science-denier". Please don't read this wrong. I am extremely grateful for some of the wonderful, kind, caring people I met along the way, and for the support of family and friends, and that we are adaptable as humans, and that I have the opportunity to carry on. This cannot be understated.
Then my brother, at 66 (also fit, never-smoker, exercise enthusiast), gets diagnosed out-of-the-blue, with stage IV esophageal cancer. He was immediately inserted into the "system". The template was invoked. Bombarded with chemotherapy that made him sicker than I'd ever seen him - throwing up, unable to move or eat. This continued for 9 sessions every 2 weeks - he had lost almost 70 pounds by then. An artificial esophagus (stent) was inserted into him. Within 6 months he had gone from a fit 170 pound man to 100 pounds. He passed last weekend. I believe the "template" may have killed him faster than the disease - and the 6 months that he did live, were brutal on him!
Cancer is, ultimately, a lonely journey for the person experiencing it (regardless of the support and love offered). I know that if I experience this again, I will be looking into alternatives, no matter how difficult the "system" makes it on one to do so ("advice", guilt, fear, no financial support or coverage, logistical challenges, etc., etc.). There has to be a better way than our current path.
Very best to you and everyone who takes the time to respond on this forum! The discourse is helpful.
MTB - Very good words ! . You're a great writer yourself - good for you . You hit on one thing , how lonely Prostate Cancer is . So true, after you get the news you have the "good one" , its hard to explain to people how your life changes . How insulated your world is now . I looked after my father 25 years ago when he was dying WITH prostate Cancer . I was his Care Giver . It left me with PTSD the Dr says . 6 months of back and forth to the hospital , dad loosing weight , dad not wanting to go to hospital for pain medication and so on . He was an engineer . smart man , but did not trust doctors . He had a Overseas contract that required him to take a physical . Prior to this he had not seen a Dr in over 10 years ! at 60 , he was told he had prostate Cancer ( quite a high PSA if I remember right ) . They said we 'think' we caught it early , which didnt add up to me give no Dr visit for 10 years and a hyper PSA level around 20-25 ( I think) . He died on a rainy west coast winter night in Vancouver , at the hospital , at 67 . I held his hand all through it . I covered his face with the bed sheets after the "death rattle" for what seemed like hours . He really wanted to live . I was not close to my father , but I owed him the ultimate respect at every point . Hence when I got PC , I got anxiety right away ( never had that before, as im quite a cool collected guy I think , also a commercial pilot - so I trained this way in life ) , and also I felt so isolated . Anyway ...enough about me . God Bless you and your family . James on Vancouver Island .