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Improving Incontinence Post Therapy

Prostate Cancer | Last Active: 1 hour ago | Replies (10)

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@edinmaryland

I would like to resurrect this thread some 🙂
prostratectomy Jan 15, 2025 catheter in for two weeks. I am now at the three month mark; or two and half month mark if this begins with catheter removal'
I have a few questions

1. I know everyone is different, I appreciate that there are many, many factors involved (age, skill of the surgeon, spread of the cancer and surgery.etc.etc) however, as a trend, what are most seeing in terms of gradual recovery/stages of continence recovery? I am doing better first thing in the morning then stress incontinence can take over the majority of my day (I cannot believe, I was told many go back to work two weeks following prostratectomy, I was leaking half the day. What kind of job could I have done?). The research shows great variability. Some men have no problems with incontinence, some have lifelong problems. It seems most do get better but with time. The research indicates 3-18 months for most males under 65 (I am 71) However, I have heard from a few that things can turn a corner around the three month period. I would love to learn more about other's experience here in terms of a timeline. Do I just need to hang in there for another 10-15 months? Long time, but if it is going to get better then I have to just wait it out.

2. Interventions: Kegels ( pelvic floor muscle and bladder retraining) are the foundational plan, paying close attention to doing both right, avoiding over-doing them and badly doing them. However, what else might help/be needed? I am on Gemtesa which could be helping. However, I have been approached with the possibility of the emsella chair and possible stimulation devices. My PT told me to avoid these, she has seen first hand disasters. I tend to believe her ( I trust her very much) . It is hard to believe that a muscle can be strengthened and re-programmed (two different animals) via some type of short cut like this. If I wanted my legs or arms to get stronger I may need to do more and more push up or curls every day. I can't imagine some device doing that for me. If I wanted to throw a ball straighter or juggle three balls, I can't see how some device can help me do that. Opinions?
3. Exercise has really been limited. I take a walk every day but that is about it. I tried riding my exercise bike a month out. I loved it, I felt like my old self, until everything went down the drain. After three days of only 30 minute work-outs ( I felt great) but stress incontinence tripled, I had trouble sleeping, my pelvic floor was rigid and sore. So I waited another month and tried it again, this time for only 20 minutes. Felt great again, then on day three, definite increase in stress incontinence. When I go for walks, stress incontinence kicks in after about 5 or 10 minutes. I wonder if I am better off limiting the walking- if I am pushing things too much or if I should continue walking and even using the exercise bike and consider 'threading a needle' In other words, the health, cardio and possible core benefits may catch up and help pelvic floor rehab or are these things detrimental and adversely affecting my progress? I can walk every day and plan on continuing doing so. I can wait another month and try the 'bike test' again. Any opinions and/or experience with this?

4. Any other advice suggestions in terms of getting through this period of time? If it boils down to really waiting it out, then I need to keep working on that. It is hard; I cannot work in public ( I do not want to be in front of others knowing I am leaking) When I have family over it makes things worse, just getting up and down, moving around especially after the morning activates stress incontinence. I know some get used to this. I know for some this is a way of life. But I sure do not want to get used to this.
I really appreciate everyone's feedback thanks

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Replies to "I would like to resurrect this thread some :-) prostratectomy Jan 15, 2025 catheter in for..."

I had my RP a year and a half ago at age 71. I was one of the fortunate one in that I had ZERO incontinence issues. I attribute it to doing Kegels religiously before and after my surgery. After reading so many others who did Kegels, At my recent Followup appointment, my Surgeon told me only 10% of RP patients have zero issues, so unfortunately, you are not alone. Based on my experience, Kegels were the answer. BTW, I did 10quick and 10/10 second movements every hour I was awake. This was after the surgery. Before, 10 quick a couple times an hour. Today, I still pee a few times a night while sleeping. But it’s much different than when I had an enlarged prostate. I don’t have that “urge” feeling, if that makes any sense. I drink tons of water which no doubt affects everything. Keep the faith, you’ll get through it!🤞

I would suggest getting your bicycle seat fitted to your sit bones, if you haven't done so yet. Many local bike shops have sit boxes to assist with that situation. I ride a good quality seat that fits me properly that has a cut out which is easier on the urethra. While tough, movement is too important to not do so. I wish I could nap.

67 when I had my NS RP. Did kegels before surgery and post. And some progress but limited. Most PT's in the Boston, Mass area had limited experience treating men, post RP. Finally found one and she's been a life saver.

During the day I am dry, and only during hiking and the gym do I wear a very thin pad.

Other tip is know which foods are bladder irritants. Removing these helped with leakage.

Good luck.