← Return to What do you do when one lymph node on PSMA is inconclusive ?

Discussion

What do you do when one lymph node on PSMA is inconclusive ?

Prostate Cancer | Last Active: 2 days ago | Replies (24)
Comment receiving replies
@johnw22

Thank you for your insight. Much appreciated. I’m 76. Diagnosed at age 70 with Gleason 6. Was on active follow up until September 2024 when path came back Gleason 9. WTF! All my care is at an NCCN/NCI designated cancer center in Ohio. Doing well on Orgovyx and starting 28 IMRT sessions soon. I’m not concerned at all about radiation to prostate but freaking out about para-aortic treatment. I wonder how many other men are out there diagnosed with Gleason 6 but harboring something much more aggressive.

Jump to this post

Replies to "Thank you for your insight. Much appreciated. I’m 76. Diagnosed at age 70 with Gleason 6...."
surftohealth88 | @surftohealth88 | 2 days ago

Same here - 2019 gleason 6 in only 2 cores of 12, genetic test (one of the first available at that time ) showed "low " risk , like in 30 years low "prediction". Six years later - IDC-P with cribriform : (. That is why biopsy should be done every 2-3 years once gleason of any kind is discovered.

I think that it is unconscionable to tell patients that 3+3 means "nothing" and that it is not even cancer ! IT IS CANCER and should be alarming in a sense that "ultra active surveillance" should be initiated at that point no matter what MRI shows or what PSA level is .

What is the point of "active surveillance" if it does not find out cancer in 3+4 stage and localized ???? Now that PSMA /CT is available it should be part of active surveillance every 2 years .

VIEW AND REPLY