Erosive osteoarthritis pain but can't take NSAIDS

Posted by chris7121 @chris7121, Jul 1, 2023

I have erosive osteoarthritis and because of a heart attack, I'm on a blood thinner and not allowed to take anti inflammatories /NSAIDS. Tylenol no longer helps. Any suggestions for alternative sources of pain relief are most welcome!

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@calicat

I too have severe osteoarthritis in my right knee-grade 4. I’m on a low dose blood thinner as well so I too can only take Tylenol. I find taking at night only mainly to relax and sleep works best. Also sleeping with a pillow between my legs helps as well. I also have been taking a supplement of Magnesium Glycinate with a multivitamin. I did get some relief from a Cortisone shot as well. My knee pain has gone from an 8 or 9 to a 3 or 4 most days. I don’t know exactly why but I’m grateful. I have a knee replacement in my future but I’m holding off as long as possible. Good luck-hope you find some relief soon.

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Hello, I see that several months have passed since your last post on this site, but have you found the solution to reducing your joint pain other than Tylenol?
I have aching knees and one hip replacement from 2018 that now is bothering me often, plus the other hip that is bone on bone (occasional aching but not chronic). I have a huge amount of temporary pain when I get up off the couch, lasting a minute or so. What would you vouch for that is working the best for you at this point in time? Has gabapentin been effective for you? I'm 77 years old. Thanks!

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Hello.....just a thought, but you might want to ask your doctor about using Celebrex for your pain. I've read where it can be used with blood thinners without the side effects of other NSAIDs. Or even poossibly a low dose of Aspirin 81mg twice daily if approved by your doctor. I know how painful arthritis is and thankful I can take my NSAIDs daily. Good luck.

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@emo

Hi! Thanks for sharing. To tell you the truth, I’m afraid of trying Cymbalta, Lyrica, or gabapentin. I know most things have side effects, but the potential psychological effects and not being able to stop cold turkey and potentially having withdrawal symptoms… Eep. I have central sensitivity (the central nervous system/brain adapts to become more sensitive to pain; new environments, experiences and medications can trigger it).

It’s also never sounded very convincing to me that when my doctors introduce it, even they sound unconvinced: “Well, we could try a Lyrica or…” with kind of a shrug.

I do take LDN (low dose naltrexone), but I don’t know that it’s helping my pain; it seems more to help with fatigue.

I hear you on: “ I would love to have less pain, but right now I'm more concerned with staying functional.” I hope you’re able to get connected with a new care team and PT(s). It’s always been tough for me to find someone who’s a good fit.

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Don’t be afraid to try everything! I’ve gone through all the nerve medications. They don’t work for me. I’ve gone through all the NSAIDs only a few work for me. The low-dose Percocet is the only opioid that works for me over 30 years and because arthritis itself is not painful. I’m sorry to say after 30 years of dealing with it. It’s usually an inflammatory property that has to be controlled. For me it started with the recommendation taking ZAZZEE tart cherry capsules. It’s sold on Amazon for 20 bucks. It got rid of my arthritis. Pain in 24 hours in my hands. I complain to the doctor and she said be thankful. And I said no you’ve been sending me to specialist for 30 years. I wanna know what the deal is. It’s a simple test for uric acid. My uric acid was out the roof. That means I have gout arthritis something The specialist don’t look for. They test for RA. They look at the x-rays and they say oh you have OA and that presents like RA but I test negatively for RA for 30 years. Turns out it was the gout keep the door open always. I also exercise now a lot after having many joints replaced. With all the joint replacements, I really didn’t get rid of the inflammatory pain which happens where my joints are required to move a lot like in my hands, my wrist and my neck. I am now on allopurinol, which doesn’t really have much in the way of side effects and that takes care of most of it, but some days are extra special bad so then I’ll take the ZAZZEE in addition to The once a day allopurinol. This weekend I did exercise and weeding and did a lot compared to what I did 10 or 15 years ago. There’s hope it can take a long time. Good luck.

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I am full of osteoarthritis. I have had one hip replacement and two toe operations as I had bone on bone in my toes. I also have cervical radiculopthy and go to a pain doctor to get injections in my neck. I have pain in my lower back and my pain MD suggested Radiofrequency Ablation to shut down the nerves. Has anyone had that procedure?

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I know RA does help. But like anything else more for some than others.

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@gussie

I am full of osteoarthritis. I have had one hip replacement and two toe operations as I had bone on bone in my toes. I also have cervical radiculopthy and go to a pain doctor to get injections in my neck. I have pain in my lower back and my pain MD suggested Radiofrequency Ablation to shut down the nerves. Has anyone had that procedure?

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I've had ablation in my low back and it does calm the nerves for months to year at a time if you are lucky until the nerves grow back. i was getting shooting pain into my butt and hip and it helped quite a bit.
Yeah many doctors treat everyone alike and we are all sooo different. Sometimes inflammation can be helped by anti-inflammatory supplements like turmeric or MSM, and like you said tart cherry. I'm going to try that again.

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