I too was diagnosed with PPPD in the fall of 2023. I don’t know what caused the onset but suspect it was nerve related. My neck (Just the right side) has bothered me from the onset. I woke up one morning and it was there. I couldn’t see correctly. I was way off balance as if extremely drunk. I couldn’t operate a vehicle and every time I was taken somewhere in a car the acceleration would cause such extreme intensity that I couldn’t do anything for the remainder of the day. I found myself confused and unable to think correctly. i’ve seen numerous doctors, including Ophthalmologist, neuro- ophthalmologist, Otolaryngologist, Neuro-Otolaryngologist, 3 neurologist, 2 Chiropractors, 2 acupuncturists, Physical therapy, 2 Naturopaths/Acupuncturist. Now I’m seeing multiple cardiologists because I think what’s happening with my central nervous system has now started affecting my heart, I’ve Been to the emergency room four times because of Afib/Aflutter. Two of those times I’ve had my heart Restarted.
After about a year, I was able to start driving again locally. My brain seems to have gotten used to my condition, but the condition is still there and hasn’t changed, except for the intensity which ebbs and flows Depending on what I’m doing. It’s a very debilitating and isolating disease.
I’m 57 years old now I exercise regularly by cycling on a stationary bike (Peloton). One day I woke up, and my life was shattered.