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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: 2 hours ago | Replies (73)
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@pavlina60

I have pancreatic NET , grade 2, stage 4 with liver metastases. Had debulking surgery on Feb.1, 2023. Been on Lanreotide every 4 weeks, have CT scans for monitoring (first every 3 mo, then every 4 mo, now twice a year). My tumor was between the spleen and the pancreas, so surgeon removed the spleen along with more of the pancreas, and gallbladder too (long term Somatouline/Lanreotide injections damage the gallbladder).
My side effects are thinning hair (I take biotin for it), elevated blood glucose. Reach out if I can be of help!
Keep the faith! This diagnosis is NOT a death sentence!💜🦓

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Replies to "I have pancreatic NET , grade 2, stage 4 with liver metastases. Had debulking surgery on..."
cordelia73 | @cordelia73 | Apr 21 9:39pm

Thanks for your answer. That's exactly what Im afraid of, this being a death sentence. Did you tumors shrink or go to "sleep"? My husband is positive and eager to start, Im the one that has been having trouble dealing with everything and wanting to know life expectancy with this type of cancer, Ive never heard of it before. I hope you are fine and getting better every day. Thanks for answering.

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