Spouse is a Diabetic 1.5

Posted by jc76 @jc76, 3 days ago

Not sure if okay if not the one with the disease but trying to learn more about my wife's disease so I can help her more. I do not have diabetes but my wife was diagnosed as a 1.5.

The doctors at Mayo (and many of them) think the Vegas nerve was injured during stomach surgery and caused an issue between her pancreas and her brain and the diabetes. However she was insulin resistant prior to that. She was just diagnosed about 3 years ago.

With the 1.5 diagnosis she does get insulin sometimes from her pancreas. She is on the computer system that automatically puts insulin when programmed to do or you enter to compensate for carbohydrates.

She has very high swings upward and low. Over the last year I had to administer the glucose shot to her when she became unconscious. We bought a visual monitor so I could see her glucose level at all times.

Is there any one else out there with a 1.5 diagnosis with similiare issues that I can learn from to help her. We do have excellent care at Mayo Jacksonville so it is not a problem with medical provider.

She does not like me addressing her eating. I see a physciatric specialist at Mayo as I develped PTSD anxiety disorder about 10 years ago. That speicalist advised not to try and direct someone to do this or that and they can rebel. So any guidance here would help with similiar experience.

She now has some other medical issues which has added even more stress and anxiety and I think that too adds to the problem on controlling her diabetes.

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

@jc76

@drlundeen
Trying to get her to join MCC with all this excellent information. I just forwarded your message about walking to reduce glucose readings. I am wondering why her endoctronologist does not recommend walking and just eat this or that.

What I see is same as you mentioned she tries to eat so much and more and more if does not come up. It seems if she eats takes a lot more time than if she drinks something. Just trying to get her to drink rather than eat.

The glucose roller-coaster is a good defnintion of what she and I experience (with her I am not a diabetic). I just I can help with the stress and anxiety she goes through with these disease.

Jump to this post

You made a good observation noticing that food does not increase blood glucose as fast as when she drinks something. As diabetics, one is tempted to "take advantage of a low glucose level" to splurge on chocolate or ice cream. This will get the job done but the fat in chocolate, ice cream and the like, will slow down the absorption of the sugar and take longer to get glucose levels up. The simple sugars in liquids like fruit juices, regular soda, honey, etc. absorb the fastest.
I personally was impatient with what seemed to take a long time for glucose to kick in and dump more sugar in. It can take 15-20 minutes for glucose to start coming up. Once the sugar is in the stomach, the glucose will come up.
Try and be patient. You will see numbers coming up faster with a finger stick as a CGM reading is about 15 minutes behind a finger stick reading.
Playing the part of a working pancreas is not easy. Unless your endocrinologist is a type 1 or 1.5 as your wife is, they don't get how difficult it is. And the condition isn't the same from day to day either. There are like 43 factors that can affect blood glucose and women have it more difficult time then men besides.
There are quite a few posters on YouTube that are knowledgeable and have diabetes, and don't have it down pat either. Crystel on her channel Diabetes Strong, covers a wide range of diabetes topics and I follow her. https://www.youtube.com/@DiabetesStrong
Hang in there guy and good for you to ask questions.

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