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Any long-term success stories from those NOT taking hormone therapy?
Breast Cancer | Last Active: Feb 8 6:59pm | Replies (83)Comment receiving replies
I also have decided not to take aromatase inhibitors. I have fibromyalgia, osteopenia, and atrial fibrillation (afib). I’ve had a stroke that was attributed to afib. At 86 I was diagnosed with stage 2 invasive lobular cancer. This cancer grows flat and is a little harder to detect. I had a screening mammogram and was called back for a diagnostic mammogram. I had a lumpectomy of my right breast (the surgeon couldn’t clean edges) followed by 21 radiation sessions. I read about a FES PET-CT scan FES PET-CT for Breast Cancer Services - NYC & Westchester | ColumbiaDoctors - New York | ColumbiaDoctors. I asked my oncologist to order this procedure. I live in Virginia and had to travel to Duke University in North Carolina to get one. The results were good. No cancer in other parts of my body. My oncologist said that I can have this screening annually.
Replies to "I also have decided not to take aromatase inhibitors. I have fibromyalgia, osteopenia, and atrial fibrillation..."
@guillermina I was diagnosed with Stage 2 ILC ER+, PR+ Her2- at 66 years old. Had mastectomy, 16 session chemo, second surgery to get clear margins and 25 radiation sessions. Tried Letrozole and Exemestane with terrible side effects. Been on Anastrazole every other day and Verzenio daily for a month.
Side Effects and osteoporosis.
I want to go off all drugs.
I live in Virginia too and thinking this test FES PER-CT Scan could help me.
Have you found the test anywhere closer?
Thank you so much.
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Subsequent to my scan at Duke University I discovered that “The Society for Nuclear Medicine & Molecular Imaging” has a web site that lists national locations who do FES PET imaging. I’ve also found out that the Sentara hospital system does these scans in Southern Virginia. This scan is for people dealing with estrogen/progesterone positive breast cancer.