Severe SI joint pain and pain stimulators

Posted by eddiestella1 @eddiestella1, Jul 21, 2023

Has anyone had severe SI joint pain from failed surgeries and had success with being in less pain from the Medtronic pain stimulator?
My pain is on a level of torture pain. I need relief. I’m on hydromorphone and it doesn’t even touch my pain. It’s awful.

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Profile picture for dianeg616 @dianeg616

Unfortunately, the SI injection didn't help me. Better luck to you.

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Thanks for getting back

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Profile picture for tiredpup1 @tiredpup1

I had the failed surgeries and decided to take the trial for the implant. I got really good results and have had the permanent one for 3 years now. I have never been sorry. I get about a 95 percent relief with it. My Implant is good for ten years, and it's given me a new lease on life. Mine is a Boston scientific also produced by Medtronic. Mine is located in my back right above my hip. Good luck with the trial.

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Is it a pain pump or the spinal cord stimulator

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Profile picture for heisenberg34 @heisenberg34

Negative. If I had bee Tom Brady, I would be as good as new by now.

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Sounds familiar I had a failed fusion L4-S1 pain began getting worse 4 weeks after the fusion, doing research the inner thighs being painful and I could rub my tailbone and pain go to my testicles went back to the surgeon in a wheelchair and told him and all he said was no you don’t have that without laying a hand on me. Released me walking with a cane or Walker to go back to work he tried at 3 months but kept me off until 4-1/2 months to go back to work as a pipefitter climbing ladders . I wouldn’t have been able to carry a lunchbox into work let alone comb a ladder with a cane. 2 years later I’m still dealing with a lot more nerve issues, walking with 2 canes , carrying a cushion to set on everywhere I go. Had to go thru pelvic therapy ( just what a straight guy wants a finger up the butt for 30 minute visits, but after the misery finding out the tailbones out of alignment and as soon as she realigned it my bowels would be good for a couple days. If I was Peyton Manning he would have made sure I was ready to go back but instead I’m construction scum that is replaceable. Peyton must have paid him well lol

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Profile picture for sbtheplumber1 @sbtheplumber1

Sounds familiar I had a failed fusion L4-S1 pain began getting worse 4 weeks after the fusion, doing research the inner thighs being painful and I could rub my tailbone and pain go to my testicles went back to the surgeon in a wheelchair and told him and all he said was no you don’t have that without laying a hand on me. Released me walking with a cane or Walker to go back to work he tried at 3 months but kept me off until 4-1/2 months to go back to work as a pipefitter climbing ladders . I wouldn’t have been able to carry a lunchbox into work let alone comb a ladder with a cane. 2 years later I’m still dealing with a lot more nerve issues, walking with 2 canes , carrying a cushion to set on everywhere I go. Had to go thru pelvic therapy ( just what a straight guy wants a finger up the butt for 30 minute visits, but after the misery finding out the tailbones out of alignment and as soon as she realigned it my bowels would be good for a couple days. If I was Peyton Manning he would have made sure I was ready to go back but instead I’m construction scum that is replaceable. Peyton must have paid him well lol

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It's interesting how these ortho surgeons rush to do surgery even though in my case a previous MRI showed no issue with the L5-S1. It's a win-win situation for them. If the surgery helps, they are the hero. If it does not help(which seems to be quite often the case), then it gets labeled "failed back surgery syndrome". If we are older and on Medicare, the money is not there to warrant further exploration. Hope you can find some help.

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Profile picture for heisenberg34 @heisenberg34

It's interesting how these ortho surgeons rush to do surgery even though in my case a previous MRI showed no issue with the L5-S1. It's a win-win situation for them. If the surgery helps, they are the hero. If it does not help(which seems to be quite often the case), then it gets labeled "failed back surgery syndrome". If we are older and on Medicare, the money is not there to warrant further exploration. Hope you can find some help.

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I’m only 53 and now on permanent disability. After 4 surgeons I went to Mayo Clinic and was told one of my screws came loose but leave it alone and put a stimulator in , which I done in January and got 4 days of 95% relief until I bent to far and pulled the wires lose. I went in April 7 and had the paddles put in instead of the leads . I’m going Thursday to get those annoying staples out and get the stimulator turned on. I’m on doctor #7 and will keep searching until I get answers

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Profile picture for sbtheplumber1 @sbtheplumber1

I’m only 53 and now on permanent disability. After 4 surgeons I went to Mayo Clinic and was told one of my screws came loose but leave it alone and put a stimulator in , which I done in January and got 4 days of 95% relief until I bent to far and pulled the wires lose. I went in April 7 and had the paddles put in instead of the leads . I’m going Thursday to get those annoying staples out and get the stimulator turned on. I’m on doctor #7 and will keep searching until I get answers

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I guess you may have violated one of the "Prime Directives" of SCS surgery...no lifting more than ten pounds; no raising arms over your head; no bending over, etc. I remember when I had mine put in and how hard it was to remember all those "don'ts". I hope it gives you as much relief as you had originally.

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Profile picture for eddiestella1 @eddiestella1

My pain is directly on the SI bone and around the SI joint. I have had 9 failed back surgeries. 7 of those have been to the right SI joint. I had all the injections. None of them never worked. The doctor that did all my surgeries said the pain pump and pain stimulator won’t work with my type of pain. The Mayo doctor thinks it will. From what I’m reading it seems like there are more negatives to the stimulator than positive. I haven’t read yet that it’s helped with other peoples pain.

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@eddiestella1 I had the PRP injection nine weeks ago. I’m worse now than before because of the new pain going down my leg. I’m 83. The PRP process according to what I’ve read is 70% effective. Maybe my age or it takes longer to work. My pain doc wanted to fuse my SI joints but reading about it decided against it. Even IF it provided relief, down the road, because the SI joint couldn’t move its little bit, it caused more serious problems at other joints! Plus there were so many things you were prohibited doing, you’d really need live in staff to help you…couldn’t bend, lift over 5 pounds, etc.

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