← Return to CAR-T Cell Therapy: Introduce yourself and connect with others

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Profile picture for oregonami58 @oregonami58

Thanks for the introduction.
I was looking for group forum online and this one looks well attended and organized so kudos to everyone maintaining this service!
I was told that my revlimid treatment had not run its full course of efficacy having been interrupted in 2017 for sst procedure. Doc at OHSU said I have to continue updated rev/kyprolis to completion then will be eligible for car-t. Obviously I hope current treatment lasts as long as possible in order to extend disease suppression.
My question is at what point does age limit car-t eligibility if, God willing, I keep plugging away successfully on kyp/rev?

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Replies to "Thanks for the introduction. I was looking for group forum online and this one looks well..."

For context I am 66 and survivor of mm for 9 years!

Hi @oregonami58, There’s no specific age cut-ff for having CART-T Therapy. A patient’s overall health, function and fitness level are more important than age in determining their eligibility for this type of therapy.

There’s a discussion in the CAR-T group that you might find interesting:
~CAR-T - Looking for statistical data for over 70 age group
https://connect.mayoclinic.org/discussion/car-t-data/
And particularly this reply posted by @cdsarmiento, who shared that her husband had his CAR-T therapy at the age of 82!
https://connect.mayoclinic.org/comment/1099324/
When you get to the point of decison making, your doctor and transplant team will be able to assess your overall health and help you determine whether it’s the best course for you.
In the mean time, as you said, keep plugging away on the Revlimid and kyprolis…been successful so far. ☺️
Are you near the transplant center should you require the CAR-T procedure?