Great Idea Hans. I am starting my manual now. I have been living the "Palliative Life" for five years. Diagnosis. First they say "You can't be cured, but you can be treated." Here's your triplet treatment (Radiation, Chemo, ADT) and "Palliative Team." I didn't know what they did, I just know they did it extremely well. Over the years I redesigned and rebuilt the team based on my needs survival needs.
Here's the current team: Oncologist #1. Fun loving local oncologist. He manages my overall care/treatments. Oncologist #2. She's a Doc/Processor and big city cancer research medical school. She takes care of my advanced treatments/surgeries and advance technology care. Epically knowledgable. Exercise Psychologist Doc, #1 She manages my physical fitness and mental health. She is my life coach, we walk, talk, drink coffee, set quality of life goals supportive of my "Palliative Life" every two weeks. She is outstanding, vital, and an angel. Cancer nutritionist #1. She is a cancer nutritionist and cancer nutrition researcher. Every three months she examines my cancer journey based on my labs, scans, and treatments. She is also a professor of nutrition and the medical school. Our quarterly sessions are wonderful, educational and supportive of my Palliative Life Goals which are based on quality of life goals established with my Life Coach. We discuss nutrition, not cancer diets, focus on nutrition. Her message is simple Eat Well, Sleep Well, Be Well.
My Palliative team goal is to help me "Live My Best Life Now."