Had my periodic trip to MDA for evaluation, CT, etc.

Pretty routine: Tumor considered "stable" with additional minor jawbone remineralization (bone regrowing and/or getting denser) around the tumor area. Continuing the BRAF V600E-targeted chemo.

Very slow progress - and it's hard to really judge when I have a different radiologist performing the CT eval each time and each of them writing in their own style. I might get size measurements of the tumor in 3 dimensions, or 2 dimensions or 1 dimension or no numbers at all. Comparison is generally against the CT from 3 months prior.

One radiologist noted TMJ arthrosis (arthritis) awhile back, none of the others have mentioned it. What I would really like is to have her evaluate across all the CT imaging.

One thing I will say: MD Anderson works very, very hard to make it the best patient experience possible. Everyone really listens. Everyone really cares. I'm a person there, not just a patient being treated for ameloblastoma.