There are many other threads going on lung NETs and DIPNECH. If you use the search tool, you can find and read through all the past comments. There are quite a few people with DIPNECH commenting.

I have both lung NETs and DIPNECH. I have over 50 nodules scattered throughout both lungs (discovered at 49 and I'm 66 now). It took 12 years from discovery to diagnosis of lung NETs and DIPNECH. I also had a chronic cough for 30 years or more until I started monthly octreotide injections 4 years ago. Life changing! Octreotide also reduced mucus and shortness of breath, reduced my allergies and chemical sensitivity. I can pet animals for the first time in my adult life! I can now go to the movies, church or any other gathering without coughing. Ahhh! The nodules are very slow growing. I did have the largest typical carcinoid tumor (2.6 cm) destroyed with microwave ablation.

I normally have a CT every 6 mo, but every 3 mo right now because there is something new, but unclear in bottom right lung (either 8 new nodules or impacted mucus due to airway blocked by two old growing nodules). Next CT in 2 weeks -- praying no other procedures will be needed.

Definitely seek out a NET disciplinary team as your general pulmonologist, oncologist and thoracic surgeon are not familiar or have limited experience. The treatment regimen for lung NETs and DIPNECH is not the same as other types of lung cancer.

In answer to your question, I'm of European descent, but no Italian. DIPNECH is primarily found in women and very rare, but likely under- diagnosed.