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F T D Anyone know Frontal Temporal Dementia? Symptoms startiNow what?
Brain & Nervous System | Last Active: Apr 26 10:22am | Replies (13)Comment receiving replies
@merrychristmas
Yes I’ve had a PET, MRI, MRA, EEG Neuropsychological
Yes, I have dementia. I am seeing a great group of neurologists (research) on Monday. They may or may not have a diagnosis to tell me which of the dementias I have.
Now, I’m thinking, does it really matter? We know I have dementia, it’s progressive, there is no cure, and it’s fatal.
Why should I worry? I don’t want to spend what precious time I have left chasing after something that doesn’t really matter…
Replies to "@merrychristmas Yes I’ve had a PET, MRI, MRA, EEG Neuropsychological Yes, I have dementia. I am..."
I totally understand that! I'm so sorry it has you too! I was set up to go to a nerophyiscaloligcal test. 6 hours at least and this is to pin point what kind it may be and how far along in it. I thought NO I canceled it because they might wa t the diagnosis, but I don't right now. It's whatever that's not treatable anyway. I've had several ischemic strokes and a few dead areas now in my brain
Systemic sclerosis (Sleraderma) , small blood vessel disease Raynouds disease, Fibromyalgia . I just want to stop all this bad news!! I understand 👍🏻
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Disregard the response I wrote you. I didn’t read your response about your PET scan.
FTD is frustrating