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Chemotherapy and Dialysis: Looking for others who have had both

Kidney & Bladder | Last Active: Apr 22 1:13pm | Replies (17)
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@oregonami58

Hi
I was diagnosed with multiple myeloma in 2016 after finding sky high creatinine (17). I had experienced acute kidney pain just prior. Immediately given end stage renal failure status and sent to dialysis along with revlimid drug. After a few months they were going to prep me for home dialysis when my numbers radically improved and quit trips to dialysis lab. Shortly after I was approved for stem cell transplant at Seattle Cancer Care. Currently I'm on rev/dex/Kyprolis in remission. Car-t probably on deck at some point hopefully far in future. Stay strong and be well.

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Replies to "Hi I was diagnosed with multiple myeloma in 2016 after finding sky high creatinine (17). I..."
Ginger, Volunteer Mentor | @gingerw | Apr 19 10:40pm

@oregonami58 Welcome to Mayo Clinic Connect. I have read your posts and can relate!

I was on Revlimid and dexamethasone from Aug 2021 until last month. We are trying an experiment now, and only doing Ninlaro [since Nov 2024] and dex. I have been on peritoneal dialysis since Sept 2022, the kidney issues are not from myeloma.

Unfortunately I cannot get a stem cell transplant, not kidney transplant, and live my life now with these two conditions. My medical care is centered n Eugene [Oregon].

Thank you for sharing your story. Keep in touch, and be well!
Ginger

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