1. < Neuroendocrine Tumors (NETs)

Small Intestine Resection

Posted by cu2 @cu2, Mar 18 1:01pm

Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise but I’m still ALIVE and WELL as to be expected, living with Stage 4 Liver Cancer. I just wanna ask Has anyone had a Small Bowel Resection and if so What’s the recovery ❤️‍🩹 to be expected. I’m having some diarrhea, some abdominal pain sometimes associated with nausea. At times sometimes over eating or well being full from meals be difficult sometimes to pass gas or belch. Although liver resection is not an option for me but to relieve me of some these symptoms I am having due to primary tumor in my small intestine or bowel however you wanna say it. Resection is an option to ease some of the discomfort that I be experiencing. I have been blessed going into my treatment of four (4) years 2/10/2025 taking the Lanreotide injection every 28 days. My Praise to the Glory of God!!!

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

cu2 | @cu2 | Apr 12 9:01am
In reply to @nevinrbaskin "Hi, I have had a resection in my small bowel 12/24. It took about a year..." + (show)
@nevinrbaskin

Hi, I have had a resection in my small bowel 12/24. It took about a year to feel better. Had a hernia surgery about 5-6 months out. The combination certainly slowed recovery. Had PRRT after that and just finished it 1/25. Waiting on scans this month to see how we did with prrt. Also been on lanreotide right through it all. The surgery for me was very important as it removed dying areas of intestinal tract and two primarys that were undetected until they went in because of the small size of them. I feel much better today than i did prior to surgery. Also on Creon and Xermelo to help with digestion and jeeping serotonin levels down. Lost about 40 pounds and since have gained ten back. Been on a low fat diet throughout. Just beginning to add some fat back now to my diet.

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Good things work out well for you. At this point we decided to wait and watch. We want to make sure it’s the best option to do. I am a Cardiac patient too. But thanks for sharing.

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cu2 | @cu2 | Apr 12 9:18am
In reply to @jlsgt "That fact that you are already on Lanreotide should help in your recovery if you do..." + (show)
@jlsgt

That fact that you are already on Lanreotide should help in your recovery if you do have a resection. Usually with Neuroendocrine cancer, surgery is a first consideration. That is not always the case though. Your team may suggest other treatments for you. You or may not be a candidate for PRRT as an example. Best of luck to you.

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Thank you and my best for you as well. At this point my team, I and especially my cardiologist decided that we will watch and wait. The Lanreotide has been a very good choice for me being all of my lesions are on the inside of my liver (through out). We will revisit this again in September.

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cu2 | @cu2 | Apr 12 9:35am
In reply to @colleenyoung "Good to see you, @cu2. You might find some helpful post in this related discussion: -..." + (show)
@colleenyoung

Good to see you, @cu2. You might find some helpful post in this related discussion:

- NETs: Scheduled for small intestine resection: What to expect? https://connect.mayoclinic.org/discussion/newly-diagnosed-and-scheduled-for-small-intestine-resection-what-to/

@hans051275, @jlsgt, @hopeful33250 and others have also recently had a small bowel resection and can share more with you.

@cu2, have you been scheduled for surgery?

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Hey 👋 I’m doing well and thanks for asking. I’ve been in therapy I have been struggling with Survivors Guilt but I’m continuing to get better ❤️‍🩹 with that too. No I haven’t been set up for surgery yet because on 3/2/2025 that we’re gonna wait and watch or watch and wait whichever comes first. Since I’m a two time Heart attack survivor my Cardiologist at Emory Midtown helped with this decision. I have a lot going on besides cancer but I’m grateful and always inspired by someone else’s story!!! Thanks for the links too.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | 3 days ago
In reply to @cu2 "Hey 👋 I’m doing well and thanks for asking. I’ve been in therapy I have been..." + (show)
@cu2

Hey 👋 I’m doing well and thanks for asking. I’ve been in therapy I have been struggling with Survivors Guilt but I’m continuing to get better ❤️‍🩹 with that too. No I haven’t been set up for surgery yet because on 3/2/2025 that we’re gonna wait and watch or watch and wait whichever comes first. Since I’m a two time Heart attack survivor my Cardiologist at Emory Midtown helped with this decision. I have a lot going on besides cancer but I’m grateful and always inspired by someone else’s story!!! Thanks for the links too.

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I get the survivor's guilt thing. It should be an issue, but it's a real thing. I find it helps to think what advice you might give a friend. If you were talking to yourself as a friend, would you want your friend (you) to feel guilty for surviving cancer?

You might find this discussion helpful and to share what you are learning:
- Cancer Survivor Guilt: What can I do to cope better?
https://connect.mayoclinic.org/discussion/survivor-guilt/

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1 reply
cu2 | @cu2 | 3 days ago
In reply to @colleenyoung "I get the survivor's guilt thing. It should be an issue, but it's a real thing...." + (show)
@colleenyoung

I get the survivor's guilt thing. It should be an issue, but it's a real thing. I find it helps to think what advice you might give a friend. If you were talking to yourself as a friend, would you want your friend (you) to feel guilty for surviving cancer?

You might find this discussion helpful and to share what you are learning:
- Cancer Survivor Guilt: What can I do to cope better?
https://connect.mayoclinic.org/discussion/survivor-guilt/

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Wow I am sitting here wanting everyone to SURVIVE but unfortunately that won’t happen. I do feel that we all in an era where technology in medicines, treatments, research etc. etc, has made it possible to live long and strong. Long time ago (15-25) years or more stage 4 was like you be gone over night. I loss my father to cancer his cancer was growing on the inside of his kidney he passed away in 2005. He didn’t have any options like we have today and I always think of him when that survivor’s guilt kicks in, his heart and his spirit was just unbelievable to see him go through that and be so HUMBLE about it. He use to say to me it will be a cure one day you will see. When I’m in a emotional survival guilt mood I can hear him say Connie wasn’t people dying from Cancer before you got it and my answer would be yes and he would say okay then don’t you know that same will happen and it won’t stop because you got it now either. But I pray and Thank God for this life I live, doctors, researchers, technologists, it’s a list that can go on and on. God given talents to do what they do every day. That’s WHY I say there’s always something to be Thankful and Grateful for Coleen!!!

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cu2 | @cu2 | 3 days ago
In reply to @colleenyoung "Good to see you, @cu2. You might find some helpful post in this related discussion: -..." + (show)
@colleenyoung

Good to see you, @cu2. You might find some helpful post in this related discussion:

- NETs: Scheduled for small intestine resection: What to expect? https://connect.mayoclinic.org/discussion/newly-diagnosed-and-scheduled-for-small-intestine-resection-what-to/

@hans051275, @jlsgt, @hopeful33250 and others have also recently had a small bowel resection and can share more with you.

@cu2, have you been scheduled for surgery?

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Thanks for the link too.

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