Has anyone had scoliosis surgery?

Posted by me75 @me75, Sep 4, 2023

Has anyone had scoliosis surgery? I'm having one this month. It will be from the lumbar to the thoracic spine, I know I will be in the hospital for seven days and ICU for two days and need a blood transfusion. I need to know more about what to expect in the hospital and after surgery and what the therapy will be like. I appreciate your information.

Interested in more discussions like this? Go to the Spine Health Support Group.

Profile picture for geekygirl9 @geekygirl9

Hi @mariahcb! So sorry for not responding sooner. The reason I had my fusion was because my curve was progressing very quickly and had just reached 50 degrees, the threshold where surgery is often considered because the spine is unstable and likely to keep getting worse. I was pain-free, but my doctor figured that since I was just 17 and my curve was continuing to progress at 5 degrees a year even though my teenage growth spurt had long since ended, I would eventually have to have surgery anyway and the procedure might not be quite as successful (i.e., they might not have been able to straighten it as much or I might have chronic pain because I waited too long). What I didn't realize was that it seems like scoliosis was also impacting my digestion, by squeezing my organs into a smaller space. That happens with some patients. I was completely backed up and miserable all the time, and then after surgery the situation improved dramatically. So it was definitely the right choice for me. What I'm trying to point out is that in some cases, scoliosis can cause symptoms other than pain. With that said, if I were you, I think I would weigh this really carefully and not take a step like this without a very good reason because the recovery is long and very difficult at any age, and I've read that osteoporosis can cause serious problems like a failed bone graft fusion or loose hardware if it's not managed well enough. Do you know why your doctor is recommending that you think about surgery, if you don't mind my asking? Also feel free to private message me if you want. Hope this helps!

Jump to this post

I find it quite interesting about the organs pushed out and around due to the scoliosis. I am referred to Mayo in Phoenix for GI problems and IBS+C. My curvature grew last year 6 degrees to 24% in six months. I know Mayo will get down to the source of why the GI tract is giving me problems, and some of it could be related to the scoliosis.

REPLY
Profile picture for cynthi13 @cynthi13

Has anyone had surgery to repair their scoliosis? I am 73, with a 48 degree curvature and have all kinds of issues that are resulting in severe sciatica. The crippling kind that affects my ability to walk. My pain doctor and neurosurgeon have said this is my only option, other than the Spinal Cord Stimulator, which would be a temporary fix, ifit is successful. I used to workout 4-5 times a week and bowl in 2 leagues. Now, I can not do any of these. If you have had this surgery, were you able to return to your activities that you loved? Thanks for your response.

Jump to this post

I have adult scoliosis. I am 69 years old. It seemed to worsen after a hip a replacement. I've tried physical therapy, cortisone injections, radio frequency ablations and shoe lifts...all for not. The back pain persists. I'm going to try a SCS next, but I'm wondering if I'm headed for scoliosis surgery down the road? The attached image of my back was taken a couple weeks ago. How does this curvature compare to others who have had surgery?

REPLY
Profile picture for Norm Dreyer @ndreyer

I have adult scoliosis. I am 69 years old. It seemed to worsen after a hip a replacement. I've tried physical therapy, cortisone injections, radio frequency ablations and shoe lifts...all for not. The back pain persists. I'm going to try a SCS next, but I'm wondering if I'm headed for scoliosis surgery down the road? The attached image of my back was taken a couple weeks ago. How does this curvature compare to others who have had surgery?

Jump to this post

Hi Norm,
It really is hard to say, as every case is different. My curve is similar to yours but much worse, plus I other confounding factors---prior fusion and hardware above that area. I will be having surgery in a few weeks.
Only a neurosurgeon or orthopedic specialists can let you know if you are a heading toward surgery. Your pain level and the potential for curve progression will be key factors.
I will attach my xray. It might make you feel a little better. 😊

REPLY
Profile picture for nlback22 @nlback22

Hi Norm,
It really is hard to say, as every case is different. My curve is similar to yours but much worse, plus I other confounding factors---prior fusion and hardware above that area. I will be having surgery in a few weeks.
Only a neurosurgeon or orthopedic specialists can let you know if you are a heading toward surgery. Your pain level and the potential for curve progression will be key factors.
I will attach my xray. It might make you feel a little better. 😊

Jump to this post

One more thought. Should surgery be recommended it is better to do it while you are younger--yes 69 is young. I am 67. I have a dear 92 year old neighbor that suffers from severe back pain and terrible quality of life--he delayed surgery, as his daughter was not supportive, and now he is told that he is too old.

REPLY
Profile picture for nlback22 @nlback22

One more thought. Should surgery be recommended it is better to do it while you are younger--yes 69 is young. I am 67. I have a dear 92 year old neighbor that suffers from severe back pain and terrible quality of life--he delayed surgery, as his daughter was not supportive, and now he is told that he is too old.

Jump to this post

Good point on the age factor. Thanks for sharing. Please keep me posted regarding your upcoming surgery. Wishing for you the best. God Bless!

REPLY
Profile picture for Norm Dreyer @ndreyer

Good point on the age factor. Thanks for sharing. Please keep me posted regarding your upcoming surgery. Wishing for you the best. God Bless!

Jump to this post

Thank you, Norm. I will.
Nadine

REPLY
Profile picture for cynthi13 @cynthi13

Has anyone had surgery to repair their scoliosis? I am 73, with a 48 degree curvature and have all kinds of issues that are resulting in severe sciatica. The crippling kind that affects my ability to walk. My pain doctor and neurosurgeon have said this is my only option, other than the Spinal Cord Stimulator, which would be a temporary fix, ifit is successful. I used to workout 4-5 times a week and bowl in 2 leagues. Now, I can not do any of these. If you have had this surgery, were you able to return to your activities that you loved? Thanks for your response.

Jump to this post

I am 67 with an “S” curve of 67 and 75 degrees. I am scheduled for fusion surgery at the end of August. Plan is to fuse from T4 to L5.

Happy to post everyone once in recovery.

I agree with the notion that it is better to do this while young and not in an emergency situation at a later date.

REPLY
Profile picture for cynthi13 @cynthi13

Has anyone had surgery to repair their scoliosis? I am 73, with a 48 degree curvature and have all kinds of issues that are resulting in severe sciatica. The crippling kind that affects my ability to walk. My pain doctor and neurosurgeon have said this is my only option, other than the Spinal Cord Stimulator, which would be a temporary fix, ifit is successful. I used to workout 4-5 times a week and bowl in 2 leagues. Now, I can not do any of these. If you have had this surgery, were you able to return to your activities that you loved? Thanks for your response.

Jump to this post

Good luck -- I am very pleased with my surgery. S2-T12. Post op 3 months at 67.

REPLY
Profile picture for cynthi13 @cynthi13

Has anyone had surgery to repair their scoliosis? I am 73, with a 48 degree curvature and have all kinds of issues that are resulting in severe sciatica. The crippling kind that affects my ability to walk. My pain doctor and neurosurgeon have said this is my only option, other than the Spinal Cord Stimulator, which would be a temporary fix, ifit is successful. I used to workout 4-5 times a week and bowl in 2 leagues. Now, I can not do any of these. If you have had this surgery, were you able to return to your activities that you loved? Thanks for your response.

Jump to this post

Hi Cindy?
I am post fusion from S2-T12 3months. I am already happy I had the surgery. I could not stand very long or walk very far towards the end. Sciatica. I walked 3 miles today. I anticipate I will return to an active life once the fusion has totally fused. I hope to bicycle ( new bike, not my road.). Not sure about golf, but I was a horrible golfer anyway. I can now make plans without weighing how much walking or standing is involved and look forward to sightseeing in Savannah in a month. I had scoliosis, stenosis and slipped disc and prior micro discectomy at L3/L4, so a major fusion was my decision as I do not want to spend the next decade in and out of surgery and healing. Good luck Tamra

REPLY
Profile picture for Norm Dreyer @ndreyer

Good point on the age factor. Thanks for sharing. Please keep me posted regarding your upcoming surgery. Wishing for you the best. God Bless!

Jump to this post

My surgery went well. I am post 2.5 months and walking 2-3 miles daily. I start PT in May and already have a trip planned to play tourist in Savannah the beginning of June. I still struggle with a few things.... backing up in my car. I bought a new small SUV (needed a new car anyway). It has a very cool blind spot set up and back up cameras... some self parking that I haven't figured out yet. :). The world will be much safer with my new purchase! Tamra

REPLY
Please sign in or register to post a reply.