I really wish you good luck, this whole thing can be pretty daunting.
I am by no means anti-radiation, I would just suggest you get a few opinions. I did not worry about my urologist getting bent out of shape or anything by doing this. I have to think most expect this and some even advocate multiple opinions. it is your body and definitely your choice.
It seems many of the urologists' advocate surgery and many of the oncologists advocate radiation ( as a trend)
I do not know where you live but I live near DC so got several opinions including the chief of urology of a big University/
If you have had a few biopsies it is not hard to send the films to a few others.
background
not exactly sure when PSA started rising (10-15-20 years ago) kept an eye on things maybe two visits a year until it was determined to be cancer ( first biopsy) Then did active surveillance which was a good choice at the time ( genetic markers indicated slow cancer) but things changed and it was time for a decision. In that brief two years it went from mostly on one side to both sides. Removal seemed best
However ( I know I am Monday-morning quarterbacking) , had I known what I know now, I could have elected for a focal ablation or one of the other focal treatments and monitored it further. This was a definite option before the cancer advanced. I am glad I got the surgery, bigger picture the cancer was growing more rapidly and I did not want to chance radiation especially as some of the experts advised to get RARP.
still, I imagine my brother and I have very similar genes. He got radiation and is a happy camper and did not have the side effects I have
as noted my aunt reports that she and my uncle are bumping into each other on their walkers in the same house they have lived in since the 60s. (he had and still has the radioactive seeds
I am glad you are getting care and checking things out on this list
There are a ton of us out here
I just want to say that I agree with everything you said and pointed out. There are so many papers, so many opinions, so many contradicting results that at the end it all gets to the fact that one has to make decision according to very personal preferences and just accept the fact that no method is "the best" and none of them grantee complete healing and on top of that not even level of gleason itself is major predictor of things down the road. What it means for one person does not have to mean for the other. We just need to concentrate on healing and take one step at the time and hope for the best, basically.
"Per aspera ad astra"