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Googled: NAC "N-acetylcysteine (NAC) is a medication and dietary supplement with anti-inflammatory and antioxidant properties. NAC-based drugs can also break up mucus in the lungs and airways. This helps people with chronic respiratory diseases breathe easier."
If this is what your doctor was referring to. Many others mention using NAC on the Mayo Connect, that they do use often or just as needed or required.
I cough up sputum and plugs nearly every day. Tiring to say the least since I nearly have to clear what comes up to my throat all day long. We all are so different.
PFT is off the scale in the right direction but CT's and sputum test say MAC/MAI infection.
I feel fine, no flare up or exacerbation either, as yet.
Curious for clarification.....what did he mean by, " He emphasizes that CTS are not benign."
Thanks for your reply.
Barbara
Replies to "Googled: NAC "N-acetylcysteine (NAC) is a medication and dietary supplement with anti-inflammatory and antioxidant properties. NAC-based..."
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@blm1007blm1007, yes I am familiar with NAC, however I have never heard before of nebulizing it. But he was very firm and confident about it. I told him that on MayoConnect, quite a few people state that they take NAC pills, but I don't remember reading about nebulizing it.
He means that CTs expose the lungs to a fair amount of radiation, which in X years could trigger cancer. I am not completely at ease with not having a CT this year, however since I can't take antibiotics, even if the CT were to say ALARM, you are SCr.., I would still be doing my airway clearance and exercise fingers crossed, nothing else. So in all fairness, it would just worry me more.He mentionned that new BE drugs are coming up. He said the criteria for the Arina-1 trial are very specific and I do not qualify for it. And that most likely the criteria for prescribing it would be the same as for the clinical trial. He said that is generally how it goes.
I am nebbing 3% twice daily, I asked my pulmonologist to prescribe PulmoSal 7% and he agreed, but he added: if it makes you bleed, stop right there, wait 2 days then go back to 3%.
I am looking forward to trying the PulmoSal, hopefully it will help me get rid of the colonies.
I still work full time and my full time is a big full time. There are so many hours in a day. I do all I can to take care of my lungs. (3 hours a day on clearance plus 45 minutes exercise) My pulmonologist is a good doctor. We talked for over an hour last visit. He told me "some people do better when they are on a lot of meds. You are the opposite.". It is true. I take a few supplements and I work hard. And I pray hard that it all continues to feel stable as it does now.
best wishes of great health to all of us!