Recurrence of prostate cancer
I was diagnosed with prostate cancer 04/2015. Stage IV, Gleason 4+5, 3 lymph nodes positive, ( I remember possibly one was distant), radical prostatectomy, radiation, hormone therapy. Also diagnosed with late stage III renal cell carcinoma. Partial nephrectomy. I'm wondering if I could expect recurrence.
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I am new her so I can not be of much use, but after reading so many posts on this forum (and on other forums) recurrence is possible for every PC but there is no reason that it will come back in your case too. Everybody is different.
I am so sorry to hear that you have to battle renal cancer now : ( and I am wishing you complete and forever healing < 3.
Thank you. I've just started coming here as well
No way of knowing. A guy in one of the online groups I attend was a Gleason nine and had surgery 30 years ago. He was having a reoccurrence after 30 years.
Gleason 7 and recurrence (lung only mets) - 17 years later - you are never out of the woods with this one - so it seems.
When did you have your prostectomy in relation to radiation and hormone therapy?
My experience: Almost identical with davidrm, without the carcinoma or kidney problems. Now going on 10 years. As others have said, each of us different.
Mine has been knock down a couple of times, but it returns. Pluvicto helped for 2 years, then it came back, again. Now, I'm repeating Pluvicto.
My hope has always been to focus on the next step, a game plan B and C for the future. I'm pretty sure I'll never be in remission and I have accepted reality. I hope yours goes well. My personal advice is to do what needs to be done with your treatments and understand your options. The world of cancer is no place for the timid or uninformed.
I received my prostatectomy in June of 2015. Then some days or weeks I started hormone therapy. They didn't do the radiation until a year or longer after. My doctor said it was a mistake on their part. Amazingly as she stated, we kinda dropped the ball on that one. My first surgical procedure also included my partial nephrectomy. I was in surgery for nearly 8 hours. Because of complications from the partial nephrectomy I had two additional surgical procedures. Maybe that has something to do with it. Their was a lot going on.
Where do you live (country)? There’s a lot of controversy about whether or not insurance will pay for a second treatment of Pluvicto. I know that it is done in Australia, Did you have any issues getting insurance to pay for it? In the USA it is questionable whether insurance will pay for it.
I no longer worry too much about recurrence. I've been in this battle for 5 years now, and I got tired of the roller coaster from my doctors ("Wow, it looks like we got it in time"... "Oops, from your rising PSA it looks like it's back"... etc.)
I do still have a reasonable chance of a cure (HDR brachy at Mayo), but I'm more or less resigned to some kind of dance between recurrence and remission. I'm 65, and right now my life is pretty good. All I need to do is to squeeze out 5 more good years, and then maybe 3 or 4 after that, and 2 or 3 after that, and before you know it I'm an old fart who dies from something else.
I believe smc24 has posted about this issue before. He is in the US. His first Pluvicto treatments were as part of a clinical trial, so neither he nor insurance paid for them.. That is how and why his second round of Pluvicto is being covered--because it counts as his first round in the eyes of Medicare and insurance companies.