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C Scan timing and scheduling

MAC & Bronchiectasis | Last Active: Apr 24 10:10am | Replies (21)

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@gigiv

@blm1007blm1007, My last CT was in December 2023, previous one in October 2021. Dec 23 showed that the biggest module I had in 2021 was no longer there. I have met every 6 months with my pulmologist after that. Last time was this past week. I rarely produce sputum, even after using the Aerobika instead of the Acapella. (I do prefer the Acapella, I think I will go back to it). My PFT is checked at each visit. It is in the normal range for my age. I rarely cough. I exercise daily, do my airway clearance (1 hour and a half morning and evening). I eat very well. My doctor says I am doing well, no flare up, no exacerbation. My grandkids visited on several occasions, while incubating something or being overtly sick: my husband got sick, I did not. My doctor says there is no reason to do a CT scan at this point. He emphasizes that CTS are not benign.
He told me last week that if I have an exacerbation or flare up, he will have me nebulize NAC. I have never heard of that. I was a bit surprised. But hopefully I won't have a flare-up or an exacerbation. I am working hard to avoid that.
Sometimes I do wonder if indeed there is any change in my lungs. I have been using the Acapella for over a year, the first 6 months I was able to cough up some sputum and a few plugs. Did it clear it all? Or are all those bacteria peacefully colonizing my lungs before triggering an exacerbation? I don't know. But since I cannot tolerate antibiotics, I have to focus on airway clearance and exercise. Nothing else I can do.
Best wishes of great health to all of us!

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Replies to "@blm1007blm1007, My last CT was in December 2023, previous one in October 2021. Dec 23 showed..."

Googled: NAC "N-acetylcysteine (NAC) is a medication and dietary supplement with anti-inflammatory and antioxidant properties. NAC-based drugs can also break up mucus in the lungs and airways. This helps people with chronic respiratory diseases breathe easier."
If this is what your doctor was referring to. Many others mention using NAC on the Mayo Connect, that they do use often or just as needed or required.
I cough up sputum and plugs nearly every day. Tiring to say the least since I nearly have to clear what comes up to my throat all day long. We all are so different.
PFT is off the scale in the right direction but CT's and sputum test say MAC/MAI infection.
I feel fine, no flare up or exacerbation either, as yet.
Curious for clarification.....what did he mean by, " He emphasizes that CTS are not benign."
Thanks for your reply.
Barbara