Hi Joie,
Yes, I’m not really NED. The chemo and radiation were keeping my cancer at bay. It is now 6 months since my last radiation treatment so I think technically that means it is no longer active though we are hoping it decimated the lesion that was radiated. I took my 2nd session of chemo last month (totaling a 1 month absence) in order to make a smooth to our new abode. When I returned for my gemzar last Monday and my blood CA19-9 and CEA were taken the results were normal for CEA and 80 for CA19-9. My dr says CEA detection lags behind the CA19-9. Before my chemo vacation my CA19-9 was 12. In January I got the Guardant 360 test and the only pancreatic mutation it showed was a TP53 mutation (benign or likely benign at 0.3% occurrence). I do have a CT scan on Monday to hopefully clarify the differences. I feel well with the exception of a new subtle pain that appears to be below the area of the liver - Hope it’s inflammation. Thank you for your support and may you and your husband have some respite from this disease during this Easter and beyond!