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Treating Granulomatosis Polyangiitis (GPA) formerly Wegener's

Autoimmune Diseases | Last Active: Apr 25 8:37pm | Replies (11)
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@rockinrobin12

I’ve been having problems with nose and eyes almost 2 years. I also have lupus but this other my doctor said that if my sinus doctor wouldn’t have recognized it at my surgery Monday, that I would be dead in 1 month ,
So about to start infusion and need advice, earnings anything that’ll help
I’m so scared.

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Replies to "I’ve been having problems with nose and eyes almost 2 years. I also have lupus but..."
gently | @gently | Apr 19 8:57am

rockinrobin, were you diagnosed with GPA by tissue biopsy. Nasal and sinus symptoms overlap with Lupus and GPA. Cheers to the sinus doctor, but death at one month is a little suspicious.
Will the infusion be Rituxan? https://www.rituxan.com/gpa-mpa.html Steroid?
It's just that you are having the early symptoms of GPA and have been having them for almost two years.

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hammock117 | @hammock117 | Apr 20 9:57am

More information 🙏 please

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