← Return to F T D Anyone know Frontal Temporal Dementia? Symptoms startiNow what?

Discussion

F T D Anyone know Frontal Temporal Dementia? Symptoms startiNow what?

Brain & Nervous System | Last Active: 3 days ago | Replies (10)
Comment receiving replies
@SusanEllen66

@kahyo you sound almost like me.
I’ve done all the “abc” and after a year, I still don’t have a definite diagnosis. However, doc said I have traits of FTD & PSP…
I live alone, and today a video on YouTube with a woman above the text I was reading scared me! At first glance I thought she was live, in my room! It took me a split second to cancel that thought…yikes.

Jump to this post

Replies to "@kahyo you sound almost like me. I’ve done all the “abc” and after a year, I..."
Zebra | @californiazebra | 5 days ago

It must be very scary to hear the doctor say that. The doctors, friends and family all blew off concerns my mother and I had about her cognitive decline. Her general health was great. Finally, she had full neuro psych testing and the results explained why others didn’t see what we saw. In some areas she still performed at the 99th percentile for her age yet other areas at the 1st percentile for her age. Still other areas were 25, 50, 75. So she could appear fine in a casual conversation but she and I saw the quick memory loss, confusion and inability to learn something new. It was hard on her. After testing, she was diagnosed with early vascular dementia.

She fell and fractured her leg and in the nursing home she got so confused and would think people on TV were in her room among other issues. The meds they gave her probably contributed to that.

Do you have family you can stay with if you get to a point you shouldn’t live alone?

VIEW AND REPLY