← Return to Gleason 9 SO wants me to stop ADT @6 Mos for look see

Discussion

Gleason 9 SO wants me to stop ADT @6 Mos for look see

Prostate Cancer | Last Active: Apr 21 9:13pm | Replies (27)

Comment receiving replies
@jeffmarc

You can do whatever you like with ADT, But you have to realize that a lot of research has going into how long ADT should be given to somebody with Gleason nine. The answer is at least 18 months. Yes, you can do 6 months, But you will probably see a reoccurrence sooner rather than later. As mentioned in the other reply to you, The person stopped ADT and found their PSA rising. When they went back on it their PSA would not go back down to undetectable. The thing is you’re inviting metastasis to grow by limiting amount at the time you take ADT.

Couple of months ago at an ancan.org meeting Two of the participants with Gleason nine had both taken vacations from ADT And we’re now living with multiple Metastasis in their body. This leaves them with chemo or Pluvicto As the usual treatments from multiple Metastasis. These guys were not happy.

I was on ADT for eight years. It kept my testosterone and PSA under control. The only reason I stopped ADT was because I’ve been on it so long my testosterone is unlikely to ever come back. I do take Darolutamide and it is keeping my PSA undetectable.

Jump to this post


Replies to "You can do whatever you like with ADT, But you have to realize that a lot..."

Thank you for your reply. My Urologist is considering this, not me. I had lost some confidence in him and made an appointment with our local Comprehensive Cancer Center for a second opinion a couple of weeks ago. Stampede study and NCCN protocol point to minimum 18 months so his 6 months fell short and confirmed my decision to seek another doctor. I have found this group's experience very helpful and full of rich resources. No one here told me what to do but pointed towards the places where the current research is and shared from their personal experiences which I respect. Eternally grateful.