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Gleason 9 SO wants me to stop ADT @6 Mos for look see
Prostate Cancer | Last Active: Apr 21 9:13pm | Replies (27)Comment receiving replies
I don't want to give medical advice, but I am Gleason 9 and after radiation I had 3 years of Lupron. Urologist decided, and I agreed, to take a short vacation from it. Immediately my PSA started creeping up, from less than 0.1 to 2 in less than a year. Every time I saw him he said not to panic yet, we'll see what it does, etc. Finally he put me back on Lupron after a year.
The PSA is still creeping up, now 2.1 I've fired my urologist and I'll be getting HDR brachy at Mayo next month. I hope it's not too late.
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I hope it isn't too late for your either. Best wishes my warrior friend. I have seen some posts pointing to new studies that this forum led me to that state 18 months minimum on ADT. I investigated them and that is the reason that I will show up next week at a Comprehensive Cancer Center research hospital for a second opinion. Sadly, not Mayo, but a well-respected NIC center. I have 3 months to make arraignments and decisions and will be on Medicare by then which opens up even more options. As I said this was proposed 2 days ago and currently not buying in. Early 70's and view it as time to take care of me. Otherwise very healthy and active and open to the best treatment. Thank you for your feedback.