1. < Neuroendocrine Tumors (NETs)

NET in the jejunum spread to liver

Posted by tgsenn70 @tgsenn70, Apr 15 10:33am

Hi Everyone,
Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your doctor handled? My husband has received this diagnosis and we are wondering about surgical options. He is taking a monthly injection, and has a CT scan done once a quarter.

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vinnie694 | @vinnie694 | 4 days ago
In reply to @dbamos1945 "@vinnie694: to Vinnie and others on Lutathera PRRT infusions for NET tumor progression! I had Lutathera..." + (show)
@dbamos1945

@vinnie694: to Vinnie and others on Lutathera PRRT infusions for NET tumor progression! I had Lutathera infusions from June-Dec 2024. I have small intestine primary with liver metastases & when tumors got larger I choose PRRT over major surgery. MRIs in Jan & April 2025 revealed tumors continued to shrink in size. My primary tumor was 7cm in Oct 2022 and now less than 1cm!
This is a great protocol with little to no side effects. I think it is a “win-win” decision! Thank goodness for Medicare! I am extremely grateful!

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My family as well as myself are praying for the same results! Thank you so much for sharing your story….

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tgsenn70 | @tgsenn70 | 4 days ago

@dbamos1945, thank you so much for sharing your story. I am very thankful to hear the treatments are working well and pray that will continue. I am going to share this, and Vinnie’s story with my husband.

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cu2 | @cu2 | 2 days ago
In reply to @tgsenn70 "Thank you for sharing. 🙏🏻 Did your doctor tell you surgery wasn’t an option?" + (show)
@tgsenn70

Thank you for sharing. 🙏🏻

Did your doctor tell you surgery wasn’t an option?

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Yes surgery dissection for my liver isn’t an option for me.

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cu2 | @cu2 | 2 days ago
In reply to @tgsenn70 "Thank you for sharing. That sounds like wonderful news for you. If you don’t mind sharing,..." + (show)
@tgsenn70

Thank you for sharing. That sounds like wonderful news for you. If you don’t mind sharing, is your current treatment an injection?

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Yes I’m on the Lanreotide injection every 28 days. I started February 10th 2021.

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