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@jordanametepe

I’m 25 years old, the headaches started at least 5+ years ago. The majority of the other symptoms about 1+ year ago. I’ve had a metallic taste in my mouth going back to my teenage years. ENT specialist performed a laryngoscopy to visualize my throat and sinuses. The findings looked normal despite he mentioned some boggy fluid in the back of my throat, didn’t seem to be a concern. Every provider I’ve told about the fluid draining from my nose and throat doesn’t to be concerned about the abnormality of that. Thyroid and hormones have been checked many times, which are within normal range. With my current Neurologist we did do an EMG, which was normal. I’ve had one MRI of my spine (without contrast) it came back normal with no suspicion of a leak. Also, a few MRI’s with contrast of the brain which was normal. Iron levels are good, I did have Covid years ago but I recovered fully so I don’t think that’s the issue. The only things that were abnormal was an elevated Creatine Kinase enzymes level (CK), Which suggested recent muscle damage and a low Red blood Cell count (RBC). Neither were too high or low, just slightly out of what’s considered the normal range. I’m not sure what would’ve caused the leak. I mean we’re all human, I’m sure there could been a time I hit my head or injured my back at some point over the years without thinking about it being anything serious. Spontaneous leaks occur too. I’ve been very open to other possibilities too and not trying to just limit this one diagnosis. But things don’t seem to be getting better and a lot of other things have already been ruled out. I’ll continue to keep faith that things will get better. God is great and I know he’ll make a way when there seems to be none.

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Replies to "I’m 25 years old, the headaches started at least 5+ years ago. The majority of the..."

@jordanametepe
Did you ever have an accident, fall or injury where you may have injured a muscle? Have you seen a cardiologist to check your heart/cardiovascular system? Do you exercise intensively? Have you lost a lot of weight where you may have lost muscle tissue? Do you eat a high protein diet?

You may want to see a nutritionist/dietitian to review diet/supplements to see if anything could help you with your symptoms. You may be anemic.

Are any of your blood results close to the minimum or maximum of the “normal” range?

Did you have your hormone levels checked? I have had the metal taste with hormone changes with pregnancy and COVID. Do you get heavy menstrual cycles?

1. https://my.clevelandclinic.org/health/diagnostics/22692-creatine-kinase-ck
2. https://resources.healthgrades.com/right-care/brain-and-nerves/elevated-creatine-kinase
3. https://www.verywellhealth.com/creatine-kinase-5324660
4. https://www.medicinenet.com/what_causes_your_red_blood_cells_to_be_low/article.htm
5. https://www.mayoclinic.org/symptoms/low-hemoglobin/basics/causes/sym-20050760
6. https://www.mayoclinic.org/diseases-conditions/anemia/symptoms-causes/syc-20351360
7. https://my.clevelandclinic.org/health/diseases/3929-anemia

@jordanametepe
I meant to ask if you smoke/vape, drink or do any recreational drugs? Do you take any prescription medications?

You are right. God is good‼️ Happy Easter‼️🙂