I have been in Clonazepam 0.5mg TID for 18 years

Posted by jeanne51 @jeanne51, Jan 7 4:49pm

My psychiatrist retired and I was left to find a replacement. It seems there are a majority of nurse practitioners these days taking patients as providers, many do not take insurance. I found a nurse practitioner with a very good educational background. I saw her in person and she renewed the medications I was in for 6 months. Next month we had a zoom meeting and she told me she wanted me off the Ambien and Clonazepam because I would get dementia or Alzheimer’s with long term use. She insisted I start tapering against my will. I had school phobia in grade school, began having depression symptoms in my 20’s, and in my late 20’s had two major panic attacks. I have been depressed with anxiety most of my adult life. I have been hospitalized twice because of this. I have never asked for an increase in dosage of Ambien or Clonazepam fur 18 years after I found a wonderful psychiatrist who was so good at medication management.
Now, tapering Ambien and Clonazepam I have started self mutilating by picking my fingers raw until they bleed. I can’t sleep at night, I have become socially phobic. I have become isolative and often think of suicide with no plan. I am 73 years old and I think it is so cruel to put me through this when all I want is to have quality of life, not quantity. I live with my husband in adult senior living which I have not adjusted to. Taking these meds away has decreased my desire to exercise and my endurance is decreasing. My new provider told me if I didn’t want to taper my medication that I should find a new one provider. I did manage to taper the Ambien but I am down to half of the Clonazepam and feel like I can’t go on. Please help me. I am on Paxil and Wellbutrin for depression but it is anxiety and insomnia making my life miserable. I am not the same person I was a year ago.
I feel miserable, she has destroyed any quality of life I had. I really don’t want to live anymore.

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@jeanne51

Why don’t you go on another antidepressant? My good doctor who retired always tapered me off a drug while I starting me slowly on another one. I know we can’t prescribe, but I am on Paxil and it has been a wonderful antidepressant for me. The side effect that might help you is
weight gain. Are you seeing a psychiatrist or medication manager with expertise in managing psych drugs? I, too, have become so sedentary that I have back pain from sitting in a chair most of the day. I also have poor balance and feel tired all the time. Have you had a good physical with lab work recently? It sounds to me like you need a good psychiatrist to get you back on track, although you don’t mention depression. My provider finally agreed to allow me Clonazepam AM, Afternoon, and at bedtime for sleep…dosage 0.5mg. My Paxil was just increased to 50 mg a day and I am also on Wellbutrin 200mg twice a day. Are you off of the Effexor? Perhaps if you are still on it they could dart you up on another medication while tapering the Effexor?
My problem is mainly situational, living in a retirement community where I am very unhappy. However I have struggled with depression and anxiety most of my life.
I pray for you too.
Jeanne

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@jeanne51
I saw a psychiatrist and he put me back on the Venlafaxine and added Valium. Neither of them were good for me. I am going through protracted withdrawal from the Venlafaxine which started to escalate to the point of me being useless. I have already tried Paxil and it wasn’t effective — but until the protracted withdrawal ever ends (if it ever does), then my body might be receptive to a different medication. My brain chemistry may have been ruined going off the Venlafaxine without proper supervision. Meanwhile, I am trying to teach my husband all the financial things I can no longer handle. He is a wonderful, loving man who has endured more in the past 7 months or so than any human being should be expected to handle. So happy you can get the extra medication you needed.

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@frouke

@jeanne51, I definitely feel the pain you’re going through, I had the same problem with Valium given to me by my previous doctor, it seemed to wear off quickly even though I heard it has a longer effect than Ativan which I use now. I have lowered my dose by half for two months now, I use a low dose of amitriptyline and also gummy at night, so far it’s helping me, I’m trying to taper down in preparation for my doctors retirement, a good piece of advice from a friend I connected with here, she has managed to free herself from this medication, I hope to be able to do the same but who knows, I’ve battled cancer twice in the past five years and it’s very stressful. I hope you’re feeling better soon.

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@frouke my psychiatrist prescribed Valium 5mg twice a day. I took it for about 5 days and stopped. It is a horrible medication. If anything, I felt worse and found it only lasted about 1 hour.

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@jeanne51

Why don’t you go on another antidepressant? My good doctor who retired always tapered me off a drug while I starting me slowly on another one. I know we can’t prescribe, but I am on Paxil and it has been a wonderful antidepressant for me. The side effect that might help you is
weight gain. Are you seeing a psychiatrist or medication manager with expertise in managing psych drugs? I, too, have become so sedentary that I have back pain from sitting in a chair most of the day. I also have poor balance and feel tired all the time. Have you had a good physical with lab work recently? It sounds to me like you need a good psychiatrist to get you back on track, although you don’t mention depression. My provider finally agreed to allow me Clonazepam AM, Afternoon, and at bedtime for sleep…dosage 0.5mg. My Paxil was just increased to 50 mg a day and I am also on Wellbutrin 200mg twice a day. Are you off of the Effexor? Perhaps if you are still on it they could dart you up on another medication while tapering the Effexor?
My problem is mainly situational, living in a retirement community where I am very unhappy. However I have struggled with depression and anxiety most of my life.
I pray for you too.
Jeanne

Jump to this post

@jeanne51
I forgot to mention, my #1 problem is anxiety. I suffer from social phobia and I was especially vulnerable at work where any new situation would cause me to panic. But, all during the years (thirty) that I was taking the Venlafaxine, I was able survive. I also suffered from a fear of male authority figures.

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@jeanne51

I didn’t think they prescribed Valium any more. It is longer acting and more difficult to taper off from. It is often used for seizures.
It sounds like you are managing your tapering well. Good luck to you.

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I think they use Valium for people who are tapering their dosage due to its longer effect than other brands, I used it many years ago when I think it was more popular. I now use Ativan for over 20 years and it works well for me but I’m worried about my doctor retiring and the next doctor might not be very helpful for me. I’m a very stressed person and this medication has always helped me to cope but since I was a cancer patient my anxiety is super high and I really need it to keep me grounded, I have a difficult time with antidepressants so it’s not an option.

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Find a new provider. Keep searching until you get one who can help you,

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@dorothy1914

@frouke my psychiatrist prescribed Valium 5mg twice a day. I took it for about 5 days and stopped. It is a horrible medication. If anything, I felt worse and found it only lasted about 1 hour.

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Valium is not the drug of choice.

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I suggest getting a new provider, trying Ketamine, magnetic therapy, or shock therapy. I am drug resistant and you may too. How long have you been depressed and on psychiatric medication? I am not a doctor and I haven’t gotten your whole picture. I feel bad for you, as I have been through 19 years of this and almost two years of fiddling around with meds I was doing so well with.
Perhaps you need hospitalization, which I have done twice. Jeanne

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@jeanne51

I suggest getting a new provider, trying Ketamine, magnetic therapy, or shock therapy. I am drug resistant and you may too. How long have you been depressed and on psychiatric medication? I am not a doctor and I haven’t gotten your whole picture. I feel bad for you, as I have been through 19 years of this and almost two years of fiddling around with meds I was doing so well with.
Perhaps you need hospitalization, which I have done twice. Jeanne

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I have been on Ativan and Xanax and the new psychiatrist prescribed Valium. I don’t like it. I took one today though.

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@frouke

I think they use Valium for people who are tapering their dosage due to its longer effect than other brands, I used it many years ago when I think it was more popular. I now use Ativan for over 20 years and it works well for me but I’m worried about my doctor retiring and the next doctor might not be very helpful for me. I’m a very stressed person and this medication has always helped me to cope but since I was a cancer patient my anxiety is super high and I really need it to keep me grounded, I have a difficult time with antidepressants so it’s not an option.

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I am an old school nurse and Valium used to be given out like candy. It does have a longer half life to clear your system. It was used for seizures.

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@dorothy1914

@jeanne51
I forgot to mention, my #1 problem is anxiety. I suffer from social phobia and I was especially vulnerable at work where any new situation would cause me to panic. But, all during the years (thirty) that I was taking the Venlafaxine, I was able survive. I also suffered from a fear of male authority figures.

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And you quit :cold turkey?: WHY? You need a new antidepressant, give it time, 3-4 weeks to work. You also need a shorter acting benzodiazepine, like Ativan or Xanax. Like I said previously, you need to be hospitalized for therapy and medication selection and adjustment. Dosage is crucial for the meds to work. There is a big difference between Ativan 0.5 mg and Ativan 10 mg. given in divided doses, always titrating up.

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