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Thank you for your sincere interest in my issues!
I have asked for that but neuro said he didn't have any evidence to support..
We are changing epileptologist in September as she has not listened to my concerns.. perhaps new one will tho she is a neurologist but after last two years with epileptologist and no help i asked for new..
Lisa was on Zonisamide, you might remember Chris, and steadily gained weight, took months for dr to change them she had severe impaction, no such issues on Dilantin..
Very strange a ER dr said her 9 minute seizure last year before volvulus diagnosed, probably triggered by nerves in intestines.. she's so complicated, also had a qt prolongation in hospital, sometimes epilepsy misdiagnosed because of that!
So hard going from Zonisamide to lamictal i just have to keep her on it toll i know gi issues resolved..
What other tests help find correct AED ? Gonna have to push for genotyping i know!
Have a lovely Easter weekend
Thanks so much Maureen, Lisa's mom
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@minajo
Hi Maureen,
I hope you had a lovely Easter with your family!
I apologize if I have been repetitive with some of my answers. My memory doesn’t work as it once did. Looking at past conversations, I see I’ve already mentioned Kerry and Epidiolex to you before, which I couldn’t remember. For me, it’s more difficult to remember a person’s history when using code names instead of just their names. Thank you for sharing your name and Lisa's; it will be easier for me to recall what I’ve shared with you in the future.
I really can’t recall any other exams that can help find the correct AED for a specific type of epilepsy. Sorry! Perhaps others can be of more help.
I’m crossing my fingers for you to have a better experience with Lisa's new doctor this coming September!
Love,
Chris (@santosha)