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Fibromyalgia and autonomic peripheral neuropathy
Autoimmune Diseases | Last Active: Sep 15, 2017 | Replies (25)Comment receiving replies
@parus Sorry that you've had problems with Humana, and I hope you'll be ready to jump on the change back to Medicare on the first day it's available. My small fiber neuropathy was diagnosed at Mayo last January, and I'm trying to find out if anyone at Mayo is working with Dr. Oaklander or if anyone at Mayo is doing cutting edge research on small fiber polyneuropathy. If not, I'll bite the bullet and fly to Boston...even though I moved to Missouri from Massachusetts just weeks ago!
Replies to "@parus Sorry that you've had problems with Humana, and I hope you'll be ready to jump..."
@darlia If you haven't yet made a decision about KC or Iowa, check out Dr. Glen Lopate at Washington University School of Medicine. He's part of http://www.neuropathycommons with Dr. Louise Oaklander.
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I am in the process of deciding between a referral to St. Luke's in KC and The University of Iowa hospital. I've heard and read that Iowa is very very good. I live in NE Missouri so either way it's a drive. Any recommendations out there from Mayo Connect friends on which would be best?
Many autoimmune disorders and fibro is one of them, including Peripheral Neuropathy with FGFR3 ANTIBODY.
DARLIA