Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Posted by Tab4025 @tab4025, Jul 10, 2017

Hi, I was diagnosed with CIPD as a complication from an unspecified autoimmune disorder. my Neurologist started me on gamma garb IVig last September. Was really working. Then, I started having hives and then angiodema after the 6th month of treatment. I had 3 Angiodema attacks but it was not until the third one that actually caused my voice box to swell and my whole face and hands swelled, that they determined it was the IVIG. They did not happen until sometime after my treatment. I was Ok during. And the first two did not occur until after after my last treatment for the month. The third one occurred Two hours after the first treatment of the month. I was on gammagard, this was the only treatment to work for my CIDP. They are cautiously going to try a different brand, flebogamma. Has anyone experienced this? Should I try this other one? thank you in advance for any information you can provide.

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@graziellaz

My husband was given 5 IVIG treatments and although he had no reactions from them after the fifth treatment, he couldn’t walk ended up in Acute Rehab. Then we find out his diagnosis is wrong, he does not have CIDP! Needless to say, I have a little faith in that Neurologist and looking for a new one.

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I'm going to see what mine says at my appointment next week and decide what to do, it's all so frustrating.

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